Advice & Support Please Newly Diagnosed & Feel ... - Thyroid UK

Thyroid UK

141,245 members166,504 posts

Advice & Support Please Newly Diagnosed & Feel Like Im On A Rollercoaster.

carolinepetrie profile image
5 Replies

Hi Everyone I was diagnosed as Hypothyroid in march this year & feel like I'm on a roller coaster at diagnosis my TSH was 62.4 and Free T4 6, I felt terrible. I was put on Levo a 100mcg straight away, it took about 6 weeks to begin noticing a difference. In May at next test my TSH was 0.35 and T4 16, however I definitely do not feel completely well and cannot lead the life I was living, some days good other days crashing and extremely fatigued with low mood (my main symptoms). My GP did not want to increase my dose last time as worried I would go hypo but another blood test due in 2 weeks I would like to push for an increase in doseage as perhaps my body is happy sitting at upper end of range. I was on holiday for 2 weeks in the sun not doing very much and felt wonderful the longest time I've felt well in a long time, but resuming normal life takes its toll. Im not long into this and already feel myself losing hope I can feel well again, would love some positive hopeful input.

Written by
carolinepetrie profile image
carolinepetrie
To view profiles and participate in discussions please or .
Read more about...
5 Replies
humanbean profile image
humanbean

Having become so hypothyroid your nutrient levels may well be very low, and low nutrients make people feel awful. A very common effect of hypothyroidism is to reduce stomach acid. When stomach acid is low gut health becomes poor and absorption of nutrients is seriously reduced.

Do you take any meds for indigestion or heartburn? How is your gut health?

When you get your next blood tests done ask your doctor for the following tests as well :

Vitamin B12

Folate

Vitamin D

Also, if possible, an iron panel and a full blood count. But you would be lucky to get all those. If your doctor won't do all of them then ask for ferritin, iron and haemoglobin. You might end up with just getting ferritin though.

carolinepetrie profile image
carolinepetrie in reply tohumanbean

Hi human bean thanks so much for your response. I can confirm I don't take any meds for either indigestion or heartburn and am seeing a nutritionist, about to do a gut health test GI Map with Zonulin. When original bloods were taken in March my B12 was 567,Serum Folate 12.5, no Vit D was done and nutritionist has put me on emulsified Vit D. Ferritin was 53 and all blood counts within the normal range aswell.

humanbean profile image
humanbean in reply tocarolinepetrie

Do you have the reference ranges for your results? With most common reference ranges in the UK your ferritin result was too low for people with hypothyroidism.

If vitamin D was not tested it isn't a good idea to supplement. It can become toxic.

You can test your vitamin D privately without involving a doctor with a finger-prick test :

vitamindtest.org.uk/index.html

carolinepetrie profile image
carolinepetrie in reply tohumanbean

Many thanks again, this is very helpful, I'll organise a finger prick test and speak to my nutritionist and I was wondering whether my Ferritin was too low, as well as increasing iron rich food in my diet is there a good supplement you could suggest?

humanbean profile image
humanbean in reply tocarolinepetrie

I wrote some posts about iron supplementing and optimal results on this thread earlier today. A lot of it should apply to you. But don't supplement iron without thorough testing. :

healthunlocked.com/thyroidu...

Not what you're looking for?

You may also like...

Advice on thyroid med dose, please!

Hello thyroid warriors, I am trying to understand which direction to go in with my thyroid meds....
Juliet_22 profile image

Was feeling better, now feel awful advice on where to go from here.

Afternoon As many of you know from previous posts I’m self medicating with NDT ( 2 grains) and...
Peanut31 profile image

Newly diagnosed help with results please

Hi I am newly diagnosed. I take 50mcg levo from 25mcg levo. This increase was made 3 weeks ago. I...
Sophi9 profile image

More advice please on blood tests

Hi again, and further to my last post could someone please advise me on recent blood tests. After...
Koababy20 profile image

Newly diagnosed as hypothyroid, please tell me things get better?? :-(

Hi everyone So pleased I have found this site so I don't feel so alone. Please forgive the long...
Tweetypie28 profile image

Moderation team

See all
PurpleNails profile image
PurpleNailsAdministrator
RedApple profile image
RedAppleAdministrator
SlowDragon profile image
SlowDragonAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.