I was diagnosed with Hashimoto’s in Jan 2009. Free T4 was less than 1.5 - only went to Docs cause I felt like crap and was sleeping a lot. T4 dosage since then has been 50mcg to 225mcg. Last two years been at 150mcg. Been back and forward to Docs/Endo since then as I feel like crap and sleep a lot. Thanked them for telling me about my Thyroid and giving me some T4, but I’d just like to be well again. Had sleep study, cortisol tests, pituary tests and a brain scan but as my Serem Free T4 level stays close to their magic zone of “normal” so I feel they are not really interested. Over last couple of years lethargy and brain fog was getting progressively worse - had a few sessions with CFS/ME clinic which was helpful from a personal point of view as it was clear to me I didn’t have it despite having another diagnosis added to my file. (Despite rest/activity there is no Change in my condition). Unfortunately clinic closed.
Out of desperation I read a book by Paul Robinson in summer of 2016 - Recovering with T3. Mentioned this to Doc’s, kicked up as much of a fuss as I could, got put under new endo via NHS waited 3 months to see her - during this time experimented with T3 in 12.5mcg doses spread throughout day. Got to see Endo and she advised to come off T3 as it may alter results. Did as I was told - and that was a backward step as Mr Cabbage Brain came back to stay - she ran her tests - told me that all was in normal range and told me to accept my CFS/ME diagnosis.
Ordered more T3 and began proper experimentation - at this stage I was doing approx 16 hours a week work as that was all I could manage without crashing badly (work have been fantastic throughout). Found best dosage for me was 25mcg at 08:00, 25mcg at 12:00 and 12.5mcg at 16:00. iPhone alarm was really really useful. Experimented with up to 5 doses a day and a T4/T3 combo.
Felt best on T3 only. You got a feeling - like a slight head shrinkage is the best way I can describe it - if I was late with a dose. Morning lethargy was much improved, daytime energy levels were slightly improved but it was the fact that my brain was working again - the fog which was now normal had significantly improved. Also body temp was more normal - I didn’t feel the cold quite as much.
During all experimentation I recorded blood pressure and pulse and temp twice a day, every day. First thing then at 20:00. Overdosing symptoms - when I was taking 100mcg T3 split 4 times a day were slightly elevated BPM, temp increased by 0.1 degree C and I had a low level buzzing headache constantly, also had trouble falling asleep.
Don’t really pay much attention to thyroid results as i have been in or slightly above the recommended range for past nine years and haven’t really felt well for any of them. The best I felt since going to Docs was the first few months on T4 - it was probably about 6 months after that I felt the symptoms returning. My naive assumption was that they would treat the symptoms not look at a chart and tell me how well I was. And the longer you are in the system the more labels they attach to you. CFS/ME not interested if you have thyroid issues, and Endo claims I have CFS/ME as their chart of Free Serum and TSH says that my thyroid is OK cause my result is in the special box marked normal range.
In late April I was getting low and reordered. Ran out in May. Back on T4 and Mr Cabbage head is back with a vengeance.
So if anyone out there has a realiable source for T3 I would appreciate it. Haven’t really got the cash to keep paying for T3 I don’t receive.