Lichens Planus : I have had Lichens Planus in my... - Thyroid UK

Thyroid UK

141,200 members166,433 posts

Lichens Planus

Silverlady5 profile image
13 Replies

I have had Lichens Planus in my mouth for many years. My dentist took a biopsy and had it analazied and explained it's similar to eczema and there is no treatment for it, I believe it's linked to auto immune disease. Has anyone experienced this problem?

Written by
Silverlady5 profile image
Silverlady5
To view profiles and participate in discussions please or .
Read more about...
13 Replies
basil-567 profile image
basil-567

I have Lichen Planus in my mouth and have done for a couple of years. In June of this year I was diagnosed with Lichen Planus on my right ankle and the dermatologist said it an auto-immune problem. I have a steroid cream for the ankle but no treatment for the mouth. I think the issue with the mouth began sometime after I was diagnosed with Hypothyroidism about 3 year ago.

B

humanbean profile image
humanbean in reply tobasil-567

Silverlady5 basil-567

netdoctor.co.uk/medicines/a...

I was prescribed Betamethasone 500mcg Soluble Tablets for use with my persistent mouth ulcers. It is an unlicensed, off-label use. It was prescribed by the max-fax (maxillofacial) department at my local hospital.

You dissolve a single tablet in about 10ml of water. Then you use the solution as a mouth wash, then spit it out, NOT swallow it. I found it absolutely brilliant, but had problems getting hold of it because it was originally prescribed by a hospital consultant.

...

Although it isn't anywhere near as good, and is simply a short-term, topical pain-reliever, I have found this stuff helpful :

ultrachloraseptic.co.uk/

I buy it off the shelf in Tesco, and just spray it on the sore bits in my mouth. I don't actually use it or need it for a sore throat very often.

...

I suspect I have Lichen Planus in my mouth. As well as the ulcers I also have lots of white lines on the inside of my cheeks. But since I haven't been to the dentist for ages due to the frequent ulceration I have no diagnosis.

Justiina profile image
Justiina

In Finland they just published a study about lichens planus and hypothyroidism. It's more common with hypothyroidism than non hypo. I am not sure if it is translated to English yet.

keeta profile image
keeta

Hi love i have hashi.s lynchen planus . And R/A .and yes i do think they are all connected. Xx

Silverlady5 profile image
Silverlady5

Thank you all for your replies most interesting 😀😀

bindy2 profile image
bindy2

I'm hypo with lichen plants in mouth. I just have to be careful not to eat too spicy hot food cause it hurts

SimonA87 profile image
SimonA87

I started getting mouth ulcers and burning lips, I saw 4 different maxillofacial doctors and got a diagnosis of burning mouth syndrome which I am not happy with.

penny profile image
penny

A quick search found this:

ijss-sn.com/uploads/2/0/1/5...

I wondered if Vit D was a factor as it is autoimmune.

Silverlady5 profile image
Silverlady5

Thank you everyone once again. I am Vit d deficient it all seems related . It's a mine field this hypothyroid, my endo reckoned being hypo rather that hyper was far easier to treat!! What a joke!! 😄😄

It's only an idea what about a dessert spoonful of honey first thing in the morning.

A good quality honey that is antibacterial. I use it if I have sinus problems and it does

work.

Silverlady5 profile image
Silverlady5

Thank you Bunnyjean that sounds an excellent idea. I would feel better using that rather than more medication I feel like I'm taking enough and it's getting more and more complicated 👍👍

basil-567 profile image
basil-567

Thank you to everyone for comments. I have attended Oral Surgery Clinic for sometime and no medication was prescribed for Lichen Planus in my mouth. I had private blood tests done and my Vit D levels are fine (I do take supplements). I do take honey most days (my husband keeps bees). I have to say that I really do not have any problem with the condition in my mouth but the ankle is a different matter. However, since applying steroid cream, there is a significant improvement

Once again, many thanks for the comments and blessings to you all

B

sue_b profile image
sue_b

hello folks, I have been researching Lichens Sclerosus and came across this research about Lichen Planus. It is all a bit technical for me but basically, they seem to be suggesting that Histamine is involved in the reaction. I know there are diets that can be followed which control Histamine but I have no details. I thought it seems like a new avenue to explore and might be helpful. All the best sue_b.

ncbi.nlm.nih.gov/pubmed/252...

Not what you're looking for?

You may also like...

Lichen Planus Oral

Hi, I’m looking for some advice I have had a problem with my mouth for sometime. In the past 6...
Hamer5 profile image

Lichen Planus /Levothyroxine

So after dreadful GP encounters and refusal to refer to Endocrinologist because “if your T4 and TSH...
DJR1 profile image

Lichen planus and thyroid

Hi folks Just needing a bit of help i had a tongue biopsy done on Monday and on doing research i...
dotti profile image

Feeling scared about biopsy for oral lichen planus

Morning lovely people. I have had hashis for over 20 years now, and in the last year have also...
AlisonL profile image

Lichen Planus - Autoimmune AIP & stopping Levothyroxine-

The amazing thing is I’ve just been to dentist & ive had autoimmune lichen Planus in my gums for...
Avidreader profile image

Moderation team

See all
SlowDragon profile image
SlowDragonAdministrator
Buddy195 profile image
Buddy195Administrator
PurpleNails profile image
PurpleNailsAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.