I would love to hear from anyone with a positive story after having graves which resulted I in a total thyroidectomy.
I was diagnosed last September after being unwell for a while but self diagnosing the menopause !
My results from my blood test had come back off the scale so high they couldn't get a correct reading.
I went to see an endeo and was put on 40mg carbimazole daily and beta blockers.
Although it bought it down and the symptoms went it never came down below the top end of range.
In June it was decided after the carbimazole affecting my liver I should have RAI or thyroidectomy.
I decided to go for RAI and came off my medication the week before as instructed. After 3 days I noticed I was trembling again and my heart pounding they did a blood test and it had gone up slightly they said they would do another blood test before the RAI which was then in a couple of days time.
I had the blood test on the day of my RAI and it had gone off the scale again and couldn't get a reading.
They said the RAI was too dangerous as my thyroid is so aggressive and it needs to come out once it settles down again.
My levels are coming down which is good I feel a lot better again and I'm just waiting my op date.
If you have some positive words for me please reply : ) x