Not tolerating thyroid meds...help please

Hello everybody. My name is Aimee. I am 40 years old and was diagnosed with Hashimoto's almost 1 year ago now. I have been unable in the interim to treat with any sort of medication due to the fact that I respond so sensitively to all supplements and medications. I also have a MTHFR mutation. I don't remember exactly which one at the moment but I could post if necessary. I find that levothyroxine and liothyronine cause me to have hot flashes and bad insomnia. I also get some shortness of breath when trying Leah thyronine on its own as well as dry and painful eyes. With ashwagandha selenium Etc I also feel some amount of anxiety and hotness. I've been told that I also have adrenal fatigue but all of the things I'm trying to do to help it heal or not helping much. I had iron infusions last year and my last ferritin check my level was at 100. My vitamin D is good as I have been supplementing. Does anyone know what the problem is and whether I really need to be on medication? While on cytomel, I experienced an improvement in my energy and mood. However my temperature seems to run a little high. Plus there's the issue of having a bit of shortness of breath. And a little bit of confusion and forgetfulness. I would love to know exactly what I'm supposed to be doing and what approach to use to help myself feel better I was told for years that it was all in my head. As a side note I also suffer from complex PTSD and one day I would also like to get tested for Lyme disease as I was bitten by two ticks during a camping trip in Eastern Washington. Does anyone know the possibility of lyme being a driving factor for autoimmune?

7 Replies

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  • I can't comment on Lyme disease... but have to ask if you have investigated using NDT (natural Dessicated Thyroid) as an alternative? Many report tolerating it better than synthetic Levo.

    hypothyroidmom.com

  • I don't tolerate Levo or NDT. NDT gave me bad gastric distress. Thank you though.

  • If your vit D was low, then other nutrients are probably low, too. Have you had your vit B12, folate and ferritin tested? If they aren't all optimal, then your body will not be able to use thyroid hormone.

    Are you taking the vit D cofactors, vit K2 - MK7 and magnesium? If not, it would be a good idea to start. :)

  • Vitamin D is now good. Vitamin B12 was perfect. I can't take folate, at least not as folic acid with my gen. mutation. Ferritin was stellar at 100 post iron infusions. I take magnesium yes.

  • So, you're saying you are no-longer taking vit D? Do keep an eye on it, it could go down again.

    If you can't take folic acid - which I wouldn't suggest you did, anyway - there's always methylfolate.

    What is a 'perfect' B12?

  • Hi greygoose. Thanks for your reply. I take 10,000 IU of Vitamin D once every week. My B12 was at 800 the last time it was checked. I have tried methylfolate and I have a bad reaction to it. Jittery, anxious on edge.

  • OK :) That's good.

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