Hi I have had hypothyroidism for the past 37 years and have taken Levothyroxine (varying doses) for most of that time. I had a period taking NDT bought online from Thailand and felt well for the first time in my life. I had to stop this and switch back to Levo however in order to be seen by an endocrinologist at Addenbrookes Hospital in Cambridge earlier this year. Have had a number of tests including a short acting Synacthen test. All ok apart from the continuously high ESR, and TSH too low. Have been told to reduce the Levo dose slightly and have been prescribed Liothyronine 5mcgs twice daily. My GP isn't able to prescribe these without approval from the prescribing committee, so today I have done a 3 hour round trip (with traffic) to collect a prescription written by another consultant (mine's on holiday).
My questions are:
Does anyone else struggle to get their GP to prescribe this medication?
Are there any special instructions for taking that I should be aware of, e.g. take on an empty stomach and avoid dairy products etc.?
Has anyone had good results with this?
Everyone struggles to get liothyronibe prescribed because if the cost. ( its currently being investigated)
I'm at a loss o understand why you went to see the endocrinologist, in order to get the synthetic t3 when you know you feel well on the ndt.
The synthetic stuff doesnt work quite the same as the ndt, its not an exact copy as if it was it wouldnt be patentable.,
Why dont you just stay on the ndt?
My reluctance to stay on the NDT was for a variety of reasons:
1. I wanted to understand the causes of my hypothyroidism - had never been investigated. As I am experiencing other health issues too I wanted to see all the relevant specialists and the endo refused to see me if I was taking NDT!
2. You can't be completely sure what you are taking when you buy online from abroad!!
Having said all of this, I haven't ruled out buying and taking NDT again.