Help any advice

Had a full thyroid ectomy about four years ago which two years later i was fine now i feel terrible i dont know what to do chest pains all the time head hurts feels kinda full i made numerous er visits were they say everything is ok except your thyroid is really low my endo dosent listen im actually in the process of switching im always short of breath panic attacks feeling nervous its so frustrating they keep trying to tell me im depressed i havemt been depressed all my life so why now im just so tired i feel dizzy all the time i just lay in the bed quit my job because i cant stand long without feeling like i wanna past out last number i had for my tsh were 0.26 anyone please comment with advice please

6 Replies

Please leave an outline of the treatment plan your doctor has made for you. Also detailed blood test results you should have. If you don't have these ask your doctor for a copy. You are legally entitled to copies of these. Please reply with all this and you will get very good advice from experienced members


Im on 150 levo 5days and 137 2days a week and im a get the test all i have at the moment is my last ths was 0.26. They didnt check the t3 and t4 at emergency room

My personal opinion (and I have a thyroid gland) is that those who have had a thyroidectomy should be given a combination dose of T4/T3. T4 is levothyroxine a synthetic thyroid hormone which should convert to T3 (liothyronine) the only active thyroid hormone and it is need in our billions of receptor cells and it is T3 which drives our whole metabolism.

The British Thyroid Association have removed T3 (liothyronine) from being prescribed and they had a perfect excuse in that the supplier tripled (or more) the cost of it. You can source it yourself but no info is posted on the open forum but through a private message/.

Adding some T3 to a reduce T4 may be very helpful as Research has shown that a combination works for many who cannot get well on T4 alone.

The very first thing you must do is get a new blood test. It has to be the very earliest possible and fasting (you can drink water). Also allow a gap of 24 hours between your last dose of levo and the test and take afterwards.

Thyroid hormones should be taken first thing on an empty stomach and wait about an hour before eating. Food interferes with the uptake.

Ask GP for TSH, T3, T4, Free T4 and Free T3, B12, Vit D, iron, ferritin and folate. We can be deficient in minerals/vitamins and they have to be optimum.

Always get a print-out of your results with the ranges (some labs wont do the 'extras' if TSH is in range). The most important FT4 and FT3 can be done privately through one of our labs. I shall give you a link and you'll see why they are important.

I would suspect your thyroid treatment is not optimal, and your Free T3 is low. Also, low nutrient levels are very common in hypothyroid people. From personal experience I know that low iron (for example) can cause chest pain. Low T3 will do the same.

If your doctor is not helpful then you need to try and find a new one. Alternatively, if possible and you can afford it, then you might be able to pay for your own blood tests without involving a doctor. There are lists of companies in different countries who can do blood testing by post on this link - it is worth reading the entire page :

If you get tests done without a doctor you could then post the results in a new thread here and ask for feedback.

Kia381, I also has a thyroidectomy 4 years ago. I've been largely in bed ever since. Have been reading this forum and slowly gone over to self medicating.

I am now a bit better and got dressed every day this week, even though I'm doing quite badly at the moment recovering from a holiday and maybe being over medicated.

We need to see your blood tests to really comment. If you can't get decent tests from your GP (at a minimum you need TSH, freeT4, freeT3. Even better to have ferritin, folate, vit D, vit B12), get them done by mail order finger prick private test. Medichecks or BlueHorizon, you can see how to do it on ThyroidUK website.

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