Do These Results Suggest I Ought To Reduce My L... - Thyroid UK

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Do These Results Suggest I Ought To Reduce My Levo Please?

Ellie-Louise profile image
31 Replies

These are my latest blood test results, I put them through the calculator.

Lately I have been getting a feeling that something is about to happen, my heart is thumping, I can feel it in my tummy too, my pulse seems to be rather fast. I looked palpitations up and apart from anxiety it mentions thyroid.

I hope it’s just my anxiety, I worry so much about my head wound, really wish it would heal but it could take months more. I was told up to 2 years. I had my op a year ago February. I want the way I feel to be down to that worry, I have been on 87.5mcg Levo since it was raised a year ago but now I’m wondering if I should go back down to 75mcg that I was on before. I just want to feel normal again and not as if the world is about to end!

Thank you.

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31 Replies
SlowDragon profile image
SlowDragonAmbassador

which brand of Levo are you taking

Ft4 is quite high

Was test done as recommended, early morning and last dose Levo 24 hours before test

Suggest you get weekly pill dispenser and reduce to 75mcg 3 days a week

Retest in 8-10 weeks

When did you last test vitamin D, folate, ferritin and B12 levels

Ellie-Louise profile image
Ellie-Louise in reply toSlowDragon

Yes testing was done correctly and I have always taken Accord Lev. Plus I do already use a 7 day dispenser.

Vitamin D hasn’t been tested.

B12 = 703 (180-640 ng/L)

Ferritin = 183 (30-204 ug/L)

Folate = 17.2 (3.0-20.0 ug/L)

PS: looking through my results on System Online they always say…abnormal but expected. I don’t know why they should say that if results are in range. Sounds rather strange to me and I don’t hear from docs about it.

Espeegee profile image
Espeegee in reply toEllie-Louise

Oh well doctors, how clued up are they? My ferritin has been over range significantly for years, like between 400-600+ in a range the top of which is 150. Not one GP has ever mentioned it despite it always being marked abnormal. I brought it up once and the GP was just looking blankly at me. Latest private test show it at 552. I don't bother to send my results to the surgery any more.

SlowDragon profile image
SlowDragonAmbassador in reply toEspeegee

Ferritin level typically rises post menopause

healthunlocked.com/thyroidu...

Thank you for your incredible patience while you have been awaiting the outcome of our ferritin reference range review. We conducted this with Inuvi lab, which has now changed the reference ranges to the following:

Females 18 ≤ age < 40. 30 to 180

Females 40 ≤ age < 50. 30 to 207

Females 50 ≤ age < 60. 30 to 264

Females Age ≥ 60. 30 to 332

Males 18 ≤ age < 40 30 to 442

Males Age ≥ 40 30 to 518

The lower limits of 30 are by the NICE threshold of <30 for iron deficiency. Our review of Medichecks data has determined the upper limits. This retrospective study used a large dataset of blood test results from 25,425 healthy participants aged 18 to 97 over seven years. This is the most extensive study on ferritin reference ranges, and we hope to achieve journal publication so that these ranges can be applied more widely.

Espeegee profile image
Espeegee in reply toSlowDragon

That’s interesting, I wonder if they will circulate it to relevant health authority labs? I’m still a good deal above the top of the new range for women my age.

SlowDragon profile image
SlowDragonAmbassador in reply toEspeegee

Ideally get full iron panel test every year or two just to check iron isn’t high

Ferritin often rises with inflammation

it’s possible to have high ferritin and low iron

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

If taking any iron supplements stop 3-5 days before testing

Medichecks iron panel test

medichecks.com/products/iro...

monitormyhealth.org.uk/anae...

10% off code here

thyroiduk.org/testing/priva...

Espeegee profile image
Espeegee in reply toSlowDragon

I had this done less than a year ago. CRP was 2.6

Black type with red and green lines
SlowDragon profile image
SlowDragonAmbassador in reply toEspeegee

Transferrin saturation is quite high

mtw.nhs.uk/wp-content/uploa...

If you eat a lot of iron rich foods suggest you reduce the amount

And don’t take vitamin C as this can increase iron absorption

SlowDragon profile image
SlowDragonAmbassador in reply toEllie-Louise

Vitamin D hasn’t been tested.

Suggest you test this yourself

Very easy test

NHS easy postal kit vitamin D test £31 via

vitamindtest.org.uk

ideally test twice year

Ellie-Louise profile image
Ellie-Louise in reply toSlowDragon

Thank you, I am going to try what you suggest. I worked it out at just 50mcg less per week.

GlowCoach profile image
GlowCoachAdministrator

Your results are looking pretty good. Even though your TSH is low, your free hormone results are well within range.

Have you tested vitamins lately, if so what were the results?

What are you supplementing with?

Ellie-Louise profile image
Ellie-Louise in reply toGlowCoach

I must admit that I forget to take my D3 etc. and when doc asked me if I took D and I told him, only when I think about it, he laughed. I like the doc so I think it was more like a smile out loud.

I do always take a B complex every morning though.

GlowCoach profile image
GlowCoachAdministrator in reply toEllie-Louise

Have you tested your vitamin levels though recently?

Low ferritin can cause awful symptoms and as a hypo person you will be vulnerable to that.

Suggest you use a pill dispenser to try and remember vit D or put it somewhere you can remember to take it.

Ellie-Louise profile image
Ellie-Louise in reply toGlowCoach

No I haven’t had any others tested, but my Ferritin doesn’t look low to me.

GlowCoach profile image
GlowCoachAdministrator in reply toEllie-Louise

Please post your latest results for vitamins and we can see if we can spot anything that needs attention.

Suggest you get everything tested as its not just down to thyroid hormones for us to feel well.

Ellie-Louise profile image
Ellie-Louise in reply toGlowCoach

I don’t have any vitamin results because the docs don’t test them. Most of my blood test was about my annual MOT. I had asked for my thyroid to be tested at the same time because I hadn’t had a test for a year. I was lucky to get what I had asked for. I can’t afford private testing.

GlowCoach profile image
GlowCoachAdministrator in reply toEllie-Louise

Try pushing GP for the vitamin tests then. If one says no, try another.

Ellie-Louise profile image
Ellie-Louise in reply toGlowCoach

I’m not the pushy type and I’ve bothered the surgery enough lately about my head. They are overworked enough as it is unfortunately.

helvella profile image
helvellaAdministrator in reply toGlowCoach

Ellie-Louise has posted a high-in-range ferritin result and good B12 and folate.

Not everyone can afford any private testing at all. I suspect anyone living mostly or entirely on the state pension, for one example, would find it very hard to afford such tests. Indeed, long-term illness (such as hypothyroidism) very often results in the lowest income levels throughout life.

GlowCoach profile image
GlowCoachAdministrator in reply tohelvella

Exactly. Thats why Isuggested she pushes GP for the tests. I hadnt seen the results she replied to SD with.

Ellie-Louise profile image
Ellie-Louise in reply toGlowCoach

So in other words you didn’t read my post and my replies to start with? I did wonder why you were repeating things.

GlowCoach profile image
GlowCoachAdministrator in reply toEllie-Louise

I dont read the whole thread when making a reply as I am generally making lots of replies and it would be too time consuming. Just doing what I can to help.

StitchFairy profile image
StitchFairy

Do you have a link for these new nutrient recommendations that have been circulated to GPs please?

humanbean profile image
humanbean

I worry so much about my head wound

I'm being nosy, and I'm not a doctor, but how did you get a head wound that will take up to 2 years to heal? And how long ago did it happen?

Did you lose a lot of blood? I know that head wounds bleed like crazy. Did you require surgery? Was the actual quantity of blood you lost considered in your treatment, and was it replaced?

I don't know what the effect of heavy blood loss is on someone whose iron and ferritin are okay or close to okay.

Since I don't know the nature of your head wound and how much blood you lost I can't tell if these links are even relevant to you :

en.wikipedia.org/wiki/Hypov...

bigwire.in/2018/03/16/10-fo...

journals.plos.org/plosone/a...

wellwisp.com/how-long-does-...

Based on your iron and ferritin levels, in your shoes I wouldn't be too worried about replacing lost iron from bleeding. I would want to replace lost B12 and folate but I see that your levels are those are quite good too.

One thing you could try that isn't outrageously expensive is treatments for diarrhoea on the basis that fluid loss leads to a loss of electrolytes. I take Dioralyte when I suspect my electrolytes are low. You can make your own electrolyte replacements at home, although the home made variety don't taste very nice... When I want to increase my sodium and/or potassium I put them into Ribena or take them with Ribena to make them more palatable. (I get severe cramp when my sodium or potassium or magnesium are low. I would suggest replacing missing magnesium if your kidneys are functional, but with kidney failure avoid magnesium unless under the supervision of a doctor.)

en.wikipedia.org/wiki/Oral_...

Links on "How to help heal surgical wounds"

nutritionnews.abbott/nutrit...

medicalnewstoday.com/articl...

One obvious thing you can't change that affects wound healing is your age. The older we get the slower wounds are likely to heal. I've noticed this effect myself - I'm in my 60s.

Ellie-Louise profile image
Ellie-Louise in reply tohumanbean

Hi hb., my head wound is to do with an operation I had in Feb ‘24. During the summer of ‘23 I was out in garden when I felt a sharp prick, just for a moment, on the top of my head. A few weeks later I felt an itch and scratched it, there was blood on my finger. A couple of days later it was still bleeding and had enlarged so I saw a doctor who wondered if it could be a skin cancer.

She referred me to the dermatologist at hospital. That appointment came through for December when the dermatologist said it looked like a squamous cell carcinoma. He told me he would remove it. I had to wait for another appointment which eventually came through for last February.

So it was cut out and stitched up…the closure was a good 8-9cm and extremely tight because it was wider in the middle…imagine having to sew a circle together! I was told that it would heal from bottom up and could take 2 years.

The biopsy took another 2 months, resulting in NO sign of any cancer, they think it was some sort of immune thing from an insect bite.

Ever since the front bit healed (perfectly) the rest has been a problem. It has healed up to the top of the hole yes, but it has to finish by making skin I suppose because it surely can’t be raw for ever! So splitting open, bleeding, scabs tight after a while then edges open again…it goes on. It is bleeding today and very sore. I’ve been given steroid cream, derma creams, healing gel but after a while you don’t know what to do for the best. This is all extremely worrying, scared that I’ll never be able to get things normal again, you name it and I worry about it. My husband is an absolute star, he’s the one who checks and cleans it for me.

Since the op I have been back to see the dermatologist 3 times, and my next appointment is this July.

So that’s me…a complete and utter mess! with a few crocheted hats. BTW. don’t even attempt to crochet raffia, it’ll kill your fingers. I made 2 lovely crocheted sun hats, but never again.

humanbean profile image
humanbean in reply toEllie-Louise

If they cut out some of your skull in treating you there is a possibility it won't ever be normal again. I had fairly minor brain surgery about five years ago and the surgeon told me the hole he made through my skull would never completely disappear - and he was right. I have a permanent depression in my skull. It doesn't go all the way through of course, so has partly healed, but I do wonder how thick that part of my skull is now.

I still get some very occasional, very small scabs where the surgery was but I don't worry about them or the surgery any more. I've (accidentally) bashed my head on things a few times since the surgery and nothing dramatic has happened.

I remember the very tight stitches as well, and I was so glad when they were removed. I think they must be standard for brain/head surgery.

I think to help yourself you should look up "How to speed up healing of surgical scars" or "How to speed up healing of head wounds" or words to that effect. I know that healing relies on good levels of some minerals and vitamins but I can't remember what they all are. One thing I do remember is that a good intake of protein is required for healing. So eating meat, eggs, dairy might help.

Ellie-Louise profile image
Ellie-Louise in reply tohumanbean

No, my skull wasn’t cut, I did see what they cut out of me though. Funnily enough I had just been reading those links about healing, and we even had a cheese, bacon and tomato omelette for dinner today. I covered all bases with that one. 😁 Did your hair grow back?

humanbean profile image
humanbean in reply toEllie-Louise

No, my hair never completely grew back. :(

Ellie-Louise profile image
Ellie-Louise in reply tohumanbean

Oh no, 😞sounds like we should form a club. Some of mine came out when I came off the pill in ‘76 and never grew back, then thyroid happened and now this! It is hard keeping cheerful about hair isn’t it. Grrrr!

humanbean profile image
humanbean in reply toEllie-Louise

I think thyroid disease, autoimmune diseases of various kinds, and menopause are probably the major reasons for female hair loss, and I've never found a way of overcoming it.

Once the hair follicles have been removed (as an unintended result of surgery) or have withered away or died there is no way of raising the dead even with nutrient supplements.

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Buddy195Administrator

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