USA help needed: I've been hypothyroid for over... - Thyroid UK

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USA help needed

tbaby66 profile image
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I've been hypothyroid for over 40 years. I was diagnosed with Hasimotos and given radioactive iodine to kill part of my thyroid so it would level out the symptoms. With that being said, about 10 years ago I was put on Cytomel and my levothyroxine was slightly decreased. I had never felt better in my life! My high blood pressure, tachycardia, and anxieties were all gone. Since then I had surgery on my gallbladder and I went severely hyperthyroid, so they yanked me off all of my thyroid meds. We then got my TSH back on track and has been stable for over 5 years but my high blood pressure, tachycardia, and anxieties are back. I had one Endo put me on 5mg of Cytomel and then 10mg and he said it wasn't helping and I didn't need it. Needless to say I was taking 25mg when I was taken off of it. No other MD that I see is willing to put me back on the Cytomel. I'm frustrated and miserable because I'm painful all over too! Is there any where that I can get Cytomel or a supplement to try to see if it will control my symptoms? I'm getting desperate and would like to try something with my MD monitoring my labs.

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anjuliet profile image
anjuliet

I am sorry, but I don't know what to tell you. :( I am experiencing some of the same symptoms you are having now. I am on blood pressure medication and also have tachycardia and some of my anxiety is back, among other things. I have been hypothyroid since 2000 after radioactive iodine treatment for severe Graves disease in my early 20s. I am on alternate 100/75mcg levothyroxine and 20mcg liothyronine daily. Even here in the UK, it seems like they are discouraging prescribing T3.

I really hate endos who think they know better, which how the endo you saw sounded like.

I don't think we're allowed to post links as to where to get Cytomel elsewhere, but through private message only...?

Have you been tested for vitamin and mineral deficiencies?

TeaLady02809 profile image
TeaLady02809

I have a source. You can email me at vfonseca02809@yahoo.com

All the sources I have read say that RAI will kill ALL of the thyroid eventually, not just part of it. If a smaller quantity is given it may just take a longer time for the inevitable to happen. I got a large dose and the residual bits from the total thyroidectomy were killed off almost overnight.

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