Exhausted... low vitamin d ..

[Salsybar73]

Good evening all

I started on 20mg of fultiam d a week and still feeling really rough my vitamin d count was 19.9

I got my blood results my serum folate seem to be low

I'm not quite sure but still feel really exhausted

I'm on 50mcg a day of levothyoxine too

Could somebody please look my ranges

Ferritin 76ng/ml

20-100

Cannot exclude iron defiency with co exsisting chronic and inflammatory conditions

Serum folate 3.1ng/ml

Serum vitamin b12 493.37 ng/l

(155.87 -1,355.4)

I'm just absolutely drained all the time

[puncturedbicycle]

Sorry you feel rough. Looks like your d supplement is a loading dose of 20,000IU. You will then need to supp daily and have regular tests (you can buy a private blood spot test if gp won't follow up) until you're stable and toward the top of the range. Folate and b12 also need attention. I think if your ferritin is near the top of range that should be fine.

Do you know if you're on the right dose of the right thyroid meds? That will also make you feel rough. I just read that your tsh was close to 5 on meds? If so you need an increase, your tsh should be around 1 on meds.

Your doc sounds neglectful. If you cannot get better treatment from this gp you may need to find another.

[Salsybar73 in reply to puncturedbicycle]

My tsh level is 2 which I think is fine

My other blood test results I have osteoarthritis in 16 discs and also in my facet joints and in my hands I have to have anti ccp test next week

Hb concentration 15.8g/do

(12-16)

Total wbc 9.4

(4-11)

Platelet count 234

(150-400)

Rbc 4.86

(4-5.2)

Haemotrict 0.466

(0.36-0.46) above high range

Mcv 95.9

(80-100)

Mch 32.5

(80-100)

Rbc distribution width 13.3%

(11.5-16.5)

Neutrophils 4.95

(2-7.7)

Lymphocytes 3.52

(0.8-3.4) above high range

Monocytes 0.75

(0.2-0.8)

Eosinphil 0.12

(0.04-0.4)

Basophil count 0.03

(0.01-0.1)

Plasma viscosity 1.81

1.5-1.72) high range

They testing Me for rhematoid arthritis

[bluebug in reply to Salsybar73]

You may feel better with a lower TSH. On here it's often recommended to have a TSH of around 1 or even lower with a free T4 in the top quarter of the range and a free T3 in the top third of the range.

You can get a Pulse article explaining all this to give to your doctor from [e-mail]

Also if your vitamin D is as low as yours you will feel absolutely terrible. Ideally to want it around 100nmol/L.

I'm not sure what 20mg of vitamin D* is in International Units (IU) but generally if your level is as low as yours it is recommended by the vitamin D council and grassroots health you can take 10,000IU per day for up to 12 weeks. Then to get retested to see where your level is and check their tables to see what you should take to for the next three months before you go on a maintenance dose.

If you are going to go down that road you need to do your own testing every 3 months until you get your level where you want. The cheapest test is City Assays for around £30.

My NHS area put me on 60,000IU for 12 weeks and then when my level was still low my GP was happy with me to ignore the guidelines and take around 5,000IU to get my vitamin D level up before going on a maintenance dose of 2,000IU.

*You sure it isn't 20mcg?

[Salsybar73 in reply to bluebug]

It says on the box 800 iu

20micrograms

Vitamin D3

Thankyou for the info

[bluebug in reply to Salsybar73]

I suggest you Google your two local NHS trusts to see if they have put on the web guidelines for vitamin D.

Then read the documents and see what treatment they advise for an adult with your level.

If this doesn't match what the doctor has prescribed you, print them out and make an urgent appointment with your GP.

Take the print outs to the appointment with you and politely but firmly ask to be treated as the local guidelines.

[Salsybar73 in reply to bluebug]

Thankyou will do that now 😃

[jill55 in reply to Salsybar73]

If you look on nutrition.org Dr Michael Greger says you need 4000 units of bit D a day. There is a video on the above site which shows you the literature and medical info as why he states this. I am on a loading dose at present and that is not high enough. I had actually felt it wearing off before i had heard the link. I've only been prescribed 1000 for after the loading dose has finished. I will be supplementing this.

[bluebug]

You will feel rough until your vitamin D level has risen.

Do you have results from a full blood count? As your ferritin level is over halfway in it's range.

You folate and B12 are low. What did your GP say about the folate level as that's below range?

[Salsybar73 in reply to bluebug]

He said their fine 😣😣

[bluebug in reply to Salsybar73]

A doctor, whether a GP or otherwise, is allowed to tell a patient to go and buy their own supplements as it is cheaper than the NHS prescribing them, therefore you need to find a new practice.

In England you no longer need to give a reason to sign up with another GP. I suggest you ask people you know, regardless of how well you know them, with other chronic conditions how they find their GPs.

Finally don't take "fine" as an answer as it is meaningless. You are allowed to get your blood test results and ranges under the Data Protection Act 1998. So I strongly suggest you get copies ASAP. If you want all your test results held electronically it will cost you £10 plus a cost for printing them. If you want your most recent test results most practices charge you the cost of a print out.

[Salsybar73 in reply to bluebug]

I have all my latest blood works ..i have copies for the last 12months ..im fed up of the just saying their fine obviously their not

Thankyou

[SlowDragon Administrator]

You really need upto date tests for TSH, FT4, FT3, TT4 and both thyroid antibodies. You are quite possibly under medicated and/or have Hashimotos

GP very unlikely to do all these

Can get done privately

thyroiduk.org.uk/tuk/testin...

If have Hashimotos then a gluten free diet may help improve symptoms

[whispers60]

apart from your other health problems, the low vitd along with lowish b12 and folate you will feelvdrained, tsh of 2 isn't " fine" for most people on medication, if mine hit 2 I am quite ill with it, please see what up to date tests you have for thyroid function and post in here, but

i have a feeling you would benefit from a meds increase

[Salsybar73 in reply to whispers60]

My doctor is just not listening to me

And it's the only doctors in the area ...doctors are a long way away on bus

A few months ago my tsh level was 1.2 and I felt still poley

[bluebug in reply to Salsybar73]

Then you either put up with ill health or travel on the bus to get better health. Only you can make that decision.

Btw feeling terrible everything will seem a long way from you even if it's 10 minutes away.

[whispers60 in reply to Salsybar73]

mine has to be around 0.5 or less for me to feel anything like human, and with your other deficiencies your body will not be using the t4 you are taking anyway,

get your vits and iron ect on a more even keel you might find the energy then to argue with your doc or travel to find a new one

[Salsybar73 in reply to whispers60]

Seeing my nurse today about my b12 and iron levels ..got to see her about my results of my chest x-ray too

I had a blood test done today for anti ccp but she's also done a 're test of iron and b12

It was her that got me an appointment to practice nurse today

Even she said that the levels are low and this is what could be causing

Numbness

Pins and needles

Dizziness

Headaches

Blur vision

Fatigue

My bowels has not been right for 4 years

I forget things all the time

Thankyou whisper for the advice 😃😃😃😃

[whispers60 in reply to Salsybar73]

do let us know how you get on

[sja11]

Just out of interest, have you had a test for helicobacterpylori?

[Salsybar73]

???? What is that please