Help with test results

Help with test results

I have been having problems with chronic fatigue for year that has been put down to depression. I no longer suffer from depression, but the fatigue is still here. I also have polycystic ovary syndrome. I have a family history of thyroid disease, auto immune disease, diabetes, heart problems and cancer.

My existing conditions do not seem to explain my symptoms which includes unexplained weight gain, extreme fatigue, food sensitivity, muscle and joint pain. I'm struggling walking and going up and down stairs (my vitamin D result may explain that). I also haven't had a period since October 2016.

I have been told by someone that suffers from thyroid disease that my TSH should be closer to 1 which is the optimal figure and my free T4 is too low. Having read up, the vitamin D deficiency, high cholesterol and thyroid results could indicate thyroid problems,

I am seeing the GP this week. Should I be asking for additional thyroid tests? What advice do you have? Could it be Hashimoto's?

Thanks so much!

17 Replies

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  • In my opinion "stay away from the NHS doctors " if you have CFS , I've been misdiagnosed and put on various drugs since I was 26 and I'm now 51.. 9 tears ago I was diagnosed with hypothyroidism but my symtons have been gradually getting worse .. by december 2016 I couldn't sleep anymore as my brain wouldn't shut down and I was urinating every 20 minutes.. 24 hours a day.. I saw 3 GP's in a week.. they told me too go home and rest !!?

    Through my own research I came across Dr. Barry Peatfield and made an appointment to see him £180 for 90 minutes .. 5 weeks later I am finally on the road to recovery .. with natural medication and supplements.. I was having Adrenal gland failure in conjunction with my under active thyroid .. In 2014 the government passed a medical act which says the NHS must pay for/partially pay for alternative medication if you have a life long condition.. I'm just about to apply..

    if you want to kick CFS up the a**e then ignore the GP's and get an appointment with Dr Peatfield.. other posts on here have mentioned him often .. and his treatment is individual and does work.. shun the synthetic drugs from the global pharmaceutical companies.. they are getting rich..you have NO LIFE ..

    Good Luck..

  • Hi KNR,

    Would you please provide a link to the 2014 medical act that you referred to. I've not heard of it. I have been very, very ill for a very long time and would appreciate some options.

    Thanks 🖖🏻

  • Hi Londinium

    Sorry I dont have the details at present but will do tomorrow as seeing my solicitor who is going to help me apply ..

    I think it's linked into a human rights act..

    the NHS have to pay or partially pay for alternative medication if you can prove that it is improving your health as opposed to a pharmaceutical drug which you get for free on the NHS for life long conditions..

    will post more tomorrow after my appointment..

  • Thank you KNR.

    I used to be prescribed a few supplements which helped my immune system, respiratory system, osteoporosis and inflammation.... but the hospital stopped dispensing them because of (they alleged) funding cuts. I was told that I will now have to get them from my GP (impossible), or buy it myself.

    Of course, they will happily provide toxic meds with serious known side effects.

    Good luck with your solicitor tomorrow. Legal aid no longer exists, so I will have to figure out how to follow in your footsteps.

    Thanks. 🖖🏻

  • I'm the first case that my solicitor is trailing so she wants me to keep stum.. whilst she works out how to attack this ammendment ..

    obviously if we win I can make what we won public .. I need to supply my private specialists natural treatment plan .. statements from my counsellor and doctor.. about how the natural meds have benefitted my health as opposed to NHS drugs and how they have made a massive improvement to my life etc ..

    sorry I can't be more informative

  • Ok. Thanks. If/when, feel free to message me privately. 🖖🏻

  • Thanks for the information. I have fatigue that is chronic. I haven't been diagnosed with chronic fatigue syndrome.

    The information about alternative therapy is interesting though.

  • matineeidle

    please read the book

    "Your Thyroid and how to keep it healthy" by Dr Barry Peatfield..

    10 weeks ago I wanted to kill myself.. not only was my fatigue also chronic but I was urinating 3 times an hour..24 hours a day and my brain would not stop whirling.food was either vomited up or passing through undigested... 5 weeks off no sleep not even massive doses of zopiclons helped.3 doctors in 1 week said go home and sleep..arrhgg ..

    I read this book and my whole life was in text ..

    I made an appointment to see Dr Peatfield..

    5 weeks later I'm a different person..

    and I can now see a future ahead of me.. it's still early days .. it's not been an easy journey but I'll never be that ill again.. why because I'm in charge now of my body and not the GPs.. who have ignored me for so long...good luck

  • Thank you so much. There's so much information. It's hard to know where to start. I'll look into it.

  • Well, your TSH says that your thyroid is beginning to struggle - what time of day did you have this test? Was it the afternoon? Because with that very low FT4, I would have expected your TSH to be higher.

    But, I don't know if that low FT4 is low enough to convince your doctor that it's too low. Probably not. But, you could suggest to your doctor that you have central hypo, rather than primary hypo. Secondary hypo is when the problem is not with the thyroid gland, but with the hypothalamus, or the pituitary. He will probably reply that central hypo is very rare. Just tell him that everything is rare if you never test for it!

    However, he should do something about that terrible vit D. That really does need a high loading dose, and that will be causing a lot of your problems.

    You also need your ferritin tested. :)

  • Thank you, I had it done at about 9am. Does that make a difference?

  • The TSH is highest early in the morning, and drops throughout the day. It also drops after eating. So we always recommend that people have their blood drawn before 9.0 am, after fasting over night.

  • Thanks for the information. Going to the GP in the morning.

  • You're welcome. :)

  • Just gob smacked as he thinks a FT4 result that barely enters the range can be normal!!!!

  • Hopefully the doctor will be receptive.

  • Read Dr Sarah Myhill's book Chronic Fatigue Syndrome. She really knows what she's talking about. I have had private treatment going down her route and it's just beginning to kick in after a few months. She has a website too. drmyhill.co.uk/wiki/CFS_-_T...

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