Hi. I have been fighting my GP to investigate a suspected endocrinology issue for sometime. I was put on levothyroxin in 2013 when my thyroid levels were found to be abnormal (sorry I don't have the results). In the summer of 2016 I had what appeared to be a thyroid storm with tachycardia, sweating and hypertension. I have been getting these symptoms in a progressively worsening fashion for some years. I was admitted to A&E after I collapsed and was found to have very low TSH of less than 0.01. My T4 was normal. The doctors in A&E couldn't find anything wrong so sent me home. My GP thought I was simply over-medicated and reduced my levothyroxin.
Fast forward to December 2016 and I finally get to see an endocrinologist and she measured a TSH of 8.41mU with T4 normal.
The endo suspects that there is an issue here though and is now looking for a possible pheochromocytoma (adrenal tumour) and is also testing growth hormone and testosterone. She observed I had thickened skin, was sweating and I had a HR of 119, palpitations and a BP of 180/100 when I saw her. Any ideas hat this might mean? Could it be my pituitary (I sometimes have minor vision problems in my periphery but the Endo tested for this and it appeared normal)?
I will add that a few years ago I was told I had bipolar disorder as my moods suddenly become very erratic (literally one minute to the next I went from calm and normal to agitated and out of control). I was put on anti-psychotics, lithium and depakote for over 5 years and gained 6 stone in weight and turned into a zombie. I stopped taking all my meds 3 months ago and feel so much more human again - I can think faster, am more cheerful and don't have suicidal thoughts anymore (something which started the moment I started the drugs). The drugs never stopped any of the symptoms. I refused electro-convulsive therapy.
I also have terrible shifting muscle\joint pain in my lower limbs, mostly in my ankles but sometime knees and thighs. I also get the same pain in my wrists and fingers. My GP has ordered rheumatism tests as a precaution, however there is no redness or swelling).
There seems like there is a lot going on. I'm only 41 and have a 7 year old son. The last 6 years have been hell and my marriage has failed because of it. I have only worked for about 25% of that time as I've been far to ill to do anything. Before 2011 I was very fit, athletic, in a great job and a happy marriage. Now i have none of this.
Is there anything else I should be investigating? What could it be? Am I going to get better if the doctor finds a pheochromocytoma or a pituitary gland issue? I am determined to beat this!