so I am very confused. : Finally saw Endo. he... - Thyroid UK

Thyroid UK

137,824 members161,645 posts

so I am very confused.

Thyroid2468 profile image
20 Replies

Finally saw Endo. he was very thorough and doing lots of bloodwork, etc. he sounded open to putting me on Armour, but he felt right now it might be too strong since my numbers are not that bad. he ended up putting me on a starting dose of 25 generic loevothroxine and is willing to up it to 50 in a few weeks if I don't have any relief from symptoms. He is also open to switching me down the line to another med if I want to.

Is this an okay place to start? Should I insist on Armour or Synthroid if I am at the early stage of Hashimoto.. TSH 4.33 all other very much normal. I am so tired of not feeling well I want to pop the generic and get started tomorrow morning! But should I wait and request something else which I probably won't be able to get next week. please advise.

Written by
Thyroid2468 profile image
Thyroid2468
To view profiles and participate in discussions please or .
Read more about...
20 Replies
greygoose profile image
greygoose

Oh dear, another useless endo!

Armour is not 'too strong' for you - what a rediculous idea! It's only as strong as the dose you take. Taking three grains straight off probably would be 'too strong', but one would never do that. One starts on 1/4 grain for two weeks and then increases by 1/4 grain every too weeks until reaching one grain, then hold for six weeks and retest.

But, doctors do like to start you on levo, and that does have certain advantages - for one thing, you can see how well you convert T4 to T3 - IF they do the right tests!

However, 25 mcg is too low a dose. This is something doctors just cannot get their heads around. It doesn't matter if you are what they call 'sub-clinical' (and they don't even really know what that means) because taking levo - thyroid hormone replacement - does not 'top up' the hormones your thyroid is making, it stops your thyroid making hormone and replaces them. So, if your starter dose is too low, you're going to feel worse, not better.

And, a TSH of 4.33 may be in what they call 'the normal range', but it is in no way normal. A normal (euthyroid) TSH is around 1, never over 2 and you are technically hypo when it reaches 3. So, there is no doubt that you are hypo. And, as you have Hashi's, it's going to get worse, not better.

So, I wouldn't waste my energy insisting on starting on Armour, but I would insist on 50 mcg straight away. 25 mcg is too small a dose. :)

Thyroid2468 profile image
Thyroid2468 in reply to greygoose

You actually said many of the things my gut was telling me! I am going to write him and tell him I will take 50 instead. And I actually have a second endo appointment next Friday ( I grabbed this one yesterday because I feel so shitty, so I squeezed into a cancellation). But he did lots of bloods, and I will be able to bring to new person and pick their brain. One thing that worried me is that he didn’t seem 100% that my body tremors are thyroid. But I hope the medicine will possibly address it.

Curious how long meds take to kick in.

greygoose profile image
greygoose in reply to Thyroid2468

No point in doing lots of bloods if you can't interpret them. And, most doctors can't!

Of course he wasn't 100% sure. He couldn't be. The problem with hypo symptoms is that they're non-specific. All of them could be caused by multiple other things. And, I don't suppose he knows much about symptoms, anyway.

Not curious at all how long the 'meds' take to work. They are not 'meds' in the normal sense of the word. They are not aspirins. They are hormones, and nothing works quickly with hormones.

Levo is T4 which is basically a storage hormone that doesn't do much until it is converted into T3. And that takes time. Then, they circulate round in the blood until they latch onto a cell receptor. That takes more time. The most essential thing to have when treating hypo is patience. Without that, you'll never get anywhere. :)

Thyroid2468 profile image
Thyroid2468 in reply to greygoose

Thank you. I will certainly tap in to my inner zen, if my body would stop vibrating! lolol.

greygoose profile image
greygoose in reply to Thyroid2468

Sounds like a good idea. :)

Batty1 profile image
Batty1

They tell you this so they don’t have to explain that they can’t or won’t prescribe Armour…. Awful

Thyroid2468 profile image
Thyroid2468 in reply to Batty1

He didn’t seem totally opposed to prescribing it. But his answer made me confused and not confident about it. I have a second opinion next week, so perhaps will get better gage on different docs opinions and be more forward about my needs.

Batty1 profile image
Batty1 in reply to Thyroid2468

Most likely you won’t get Armor from any Endo you see this a lot here…. I actually had my Endo say “Eww” you know its made from a pig … “rolling my eyes”.

Thyroid2468 profile image
Thyroid2468 in reply to Batty1

I hope you don't still go to someone who rolls his eyes! Actually this guy was a bit pliable. He listened a lot and was very open to various blood tests that I don't even think were on his mind (cortisol, Dhea, heavy metals, plus the reg B12, D etc.). However, the person I go to next week is much younger, I would love to see their response. I want someone telling me "lets do these bloods" not me telling him...However at least he was open!

Batty1 profile image
Batty1 in reply to Thyroid2468

I rolled my eyes at him.

TSH110 profile image
TSH110 in reply to Batty1

So are replacement heart valves but no one is raving about that and you get a choice with those pig or synthetic. Pig require no warfarin for life.

Why don’t WE get a choice or get ridiculous comments like that!

Ever read what’s in a vaccine? I was a bit taken aback. I still get them, nevertheless.

I’d rather have a natural product as close to what my thyroid made than some aseptic synthetic pro hormone that made me feel like pants.

Batty1 profile image
Batty1 in reply to TSH110

Yeah his comment was pretty pathetic and it really came down to he didn’t want to prescribe it just like he won’t test FT3…. Thyroid disease in my experience isn’t seen by medical as an important health issue … take your pill and go away attitude that they all seem to have.

TSH110 profile image
TSH110 in reply to Batty1

Oh dear no free T3 testing how can he know anything? He simply does not understand his supposed area of expertise and is not keeping up with current research - lazy and ill informed - not likely to inspire confidence is it?

Batty1 profile image
Batty1 in reply to TSH110

I’ve seen 7 Endo’s in the past 5 years and none of them test FT3 and offer no reason why they don’t.

TSH110 profile image
TSH110 in reply to Batty1

It’s very poor isn’t it.

My endo did. They thought I had Graves’ disease initially but he realised it I was atropic autoimmune thyroiditis, some sort of goiterless Graves/hashis hybrid and pretty horrible especially in the later stages. I had dreadful problems even getting a diagnosis so was very I’ll by te time I got treatment. I never hit in with Levothyroxine it dud save mi life but never made me properly better but NDT did.

humanbean profile image
humanbean in reply to Batty1

Thyroid disease in my experience isn’t seen by medical as an important health issue

Probably because most sufferers are women. I think the medical profession is institutionally misogynist.

Batty1 profile image
Batty1 in reply to humanbean

I agree although last time I said something similar to what you just said I was growled at.

humanbean profile image
humanbean in reply to Batty1

I actually had my Endo say “Eww” you know its made from a pig

So is bacon and pork chops, and people eat those without doctors going "Ewwww".

Batty1 profile image
Batty1 in reply to humanbean

Exactly but what can I say.

humanbean profile image
humanbean in reply to Batty1

Nothing much - mustn't puncture a doctor's self-esteem and his superiority complex, must we?

You may also like...

New bloods - I am SO confused!

confused. 5 weeks ago I came off just Levo and started combined treatment of Euthral (100mg levo...

About B12 and the use of supplements - help please as I am very confused.

a supplement. The answers seemed to suggest you should stop supplementing for between a week and 5...

Am I not converting very well?

results for context. I feel like I am treading a very fine line with my energy levels at the...

ITS ALL BACK AND I AND SO VERY SAD

MYSELF I WAS GETTING BETTER ..tHEN 3 DAYS AGO I STARTED GETTING INNER TREMOR AGAIN SHAKES AND...

So cross with GP! But so confused with blood results and how I feel.

results show I am taking too much thyroxine. He wanted me to lower the dose, I said no. There is...