Have posted several times before, but I’m really at the end of my tether.
I’ve been having symptoms of hypothyroidism for 11 years but tests results were always normal (TSH generally 1.3-1.7). Since september I’ve decided to do private tests and in the last couple of months I’ve done them more frequently - my symptoms are up and down so I thought my levels might be too.
A month ago I had my first higher TSH reading: 5.95 - I did go to the doctors and they said it’s not high enough, retest in 3 months (which they’ve booked in). I was surprised it was so much higher in such a short space of time so I retested and it was back in the 1s. Retested again on Monday as I’d had four days of feeling like absolute death and it’s now 3.72, so high but low enough that the doctors would completely dismiss it. My TPO antibodies are strange 16, then up to 22.4, now back down to 13.
I’m booked in for a wide range of tests in August via the GP and they are including antibodies at my request. It’s a complete lottery what the results will be on that day.
I’m starting to feel like a trial of self medicating is my only option here, depending on those results in August. Any other suggestions? Otherwise it’s just give up on this and accept that im going to feel awful, but now I have children and I need to be well for them.
I’m on vit D and folate and my levels are going up so that’s good.