I have been diagnosed with hypothyroidism for 12 years and have been on levo thyroxine for 12 years. I started on 50mg but then was put onto 75mg a couple of months later as 50mg was not making the symptoms better. So I was on 75mg for 10 years with annual check ups.
I have not felt 'well' since I was 18, I'm now 33! I have had silly doctors mention things to me like "You do know you are at higher risk of developing diabetes" but then never testing my blood sugar levels. Also lovely comments about how I need to lose weight! I have never lost any weight since starting on levo. It was not until I joined here and spoke to a pharmacist that I realised that I needed to be tested for a lot my than my T4!
So I went to my doctors two years ago and demanded I saw an endo as I think 10 years of being fobbed off and not knowing how or why I have hypothyroidism is enough. I went to see an endo who told me it wasn't my fault that I have hypothyroidism and just that my thyroid didn't work (not much to go on there!). I asked about T3, he said no, then I asked if I should take iodine, he also said no. But he agreed to up my dose of Levo to 100mg. I felt a bit better and had about 5% more energy!!!
Then this summer after having my annual blood test I was told that my Levels was too high and I'd have to go back on 75mg, which I did. I put on weight and felt tired as usual. I went to see another doctor about something else and she asked if I was feeling tired and said I could start taking 100mg of levo but if I felt twitchy or ill to go back to 75mg.
I don't know what to do as I seem to have to ask my doctor for blood tests, what if a different doctor won't let me choose my dose anymore (doesn't make me feel much better anyway!)?
I would just like to feel well again but I hate that doctors don't seem to know much about my condition or what to test for. Please help : (