I found an OLD letter from my endo from 2005 it was when I was first diagnosed with Hypothyroidism. This is what it said:
TSH is >99
Free T4 11.3
Free T3 3.96 and thyroid peroxidase antibodies 260 giving a diagnosis of autoimmune hypothyroidism.
My question is does this mean I have Hashimoto's? I never really understood it and asked my docs recently if I have hashimoto's and they said no i don't.
Recently I have been suffering with really high anxiety, palps, feeling a bit shakey and on edge. I'm 36 now, take 100mg Levo everyday, take the same brand.
I had my thyroid tested recently but they only tested t4 and tsh.
T4 16.8 [11 -23]
TSH 0.07 [0.27 - 4.5]
My levels seem to change over time. I seem to differ from 75mg - 100mg. If I just take 75mg my thyroid goes under if I take 100mg over time I feel slightly over and start getting symptoms. I have been on 100mg and 75mg alternate days which seems to work well but this changed two years ago when they put me on 100mg a day a little too late because I miscarried because I went underactive when pregnant and they left me 4 weeks without upping my dose. I am still trying to conceive.
I also suffer with a lot of water infections. Sorry this is a lot of information just building up the picture of my situation.
The doctor is ringing me tomorrow to talk about my latest results. Any advise would be appreciated.
Written by
robynrose67
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So you definitely have 'autoimmune hypothyroidism'
(the TPOab (thyroid peroxidase antibodies) prove that autoimmunity is the cause.
Technically "Hashimoto's " was originally defined as 'hypothyroidism with a goiter' ( enlarged thyroid gland) .. it was later found to be an autoimmune disease.
There are presentations of autoimmune hypothyroidism that do not have a goitre.
Ord's Disease was the original term for 'hypothyroidism without a goitre' (before Dr Hashimoto discovered the form with a goitre)
So if you never had a goitre , then your GP is technically correct ... you don't have Hashimoto's ,you have a non goitrous form of autoimmune hypothyroidism .
Some would call that Ord's Disease, but the term is rarely used today. The definitions of the differing forms of autoimmune hypo are very woolly .
As a general rule the NHS don't use the term "Hashimoto's" .... they tend to call all forms "Autoimmune Hypothyroidism" and don't distinguish between them because it makes no practical difference , the cause is still autoimmune and the treatment is the same regardless of having a goitre or not .
On the internet all forms of autoimmune hypo have tended to get called Hashimoto's, even those without goitre. Some Doctors don't seem to like using the term Hashimoto's , (probably because it has become so common on the internet).
But you have had a thyroid ultrasound? Asking because I know a few people that are given a diagnosis of hypothyroidism through blood work, but have never had one. And goitres can not always be felt through a physical test. Mine was not by a GP, and two of the modules were a good size (3.2 cm & 3.9?cm).
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