Can anyone help with results please?: Hello... - Thyroid UK

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Can anyone help with results please?

Jojozo profile image
10 Replies

Hello lovely people, I've just had my latest test results and I was wondering if anyone could help with them? I'm 42 and I've been on Thyroxine for 22 years. I added T3 (I sourced it via a doctor, and then via the website off my own bat) after being diagnosed with Hashimoto's three years ago. My T3 levels are now too high and my serum TSH is very low, but aside from needing to cut down on my T3 I don't really understand what it all means! Many thanks in advance for any advice x

Serum free thyroxine - 19.0 (12-22)

Serum free triiodothyronine - 12.2 (3.1-6.8)

Serum TSH - <0.01 (0.27-4.2)

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Jojozo
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SeasideSusie profile image
SeasideSusieRemembering

Jojozo When taking T3 your TSH is going to be very low or suppressed, it also usually lowers FT4 as well so yours is quite high in range. Your FT3 is far too high, it's the one that should be kept in range, long term over range FT3 can cause problems.

What doses of Levo and T3 are you on? Seems as though some tweaking could be in order.

Are your vitamins and minerals all at optimal levels - Vit D, B12, Folate and Ferritin. All are important.

Are you addressing your Hashimoto's by being strictly gluten free and supplementing with selenium? These help reduce the antibody attacks, as does low/suppressed TSH so yours is really where it should be for a Hashi's patient.

Jojozo profile image
Jojozo in reply to SeasideSusie

Thanks so much for your reply. I'm on 150mg of thyroxine and 10mg of T3. I've now cut down on my T3. That's great to know about the vitamins too. I am taking selenium but not the others. I'll have to look into that. If I'm being honest, I'm not gluten free as I do slip sometimes. I'm guessing that's a very important factor? Thanks again.

SeasideSusie profile image
SeasideSusieRemembering in reply to Jojozo

I'm not Hashi's so can't speak from personal experience but many members here say they benefit enormously from being gluten free and if they do eat the smallest amount they suffer for it!

I am actually very surprised at the small amount of T3 that you take pushing you so much over range. I would question whether you actually need it.

What were the circumstances when you added it? What were your FT4 and FT3 results that prompted the addition of it? Was it the doctor who suggested it?

It's not Hashimoto's that's a factor for introducing T3, it's poor conversion of T4 to T3 and that can only be known by having FT4 and FT3 tested at the same blood draw. My blood test showed poor conversion and I did a urine thyroid test (which shows how much thyroid hormone is getting to the cells) and that confirmed it, then I sourced and added T3 to my Levo.

Jojozo profile image
Jojozo in reply to SeasideSusie

Hi Susie, I went to see a private doctor who did a ton of tests and told me that my T3 levels were 'disastrous' so he put me on it. I've been taking it ever since, so for about two years now. I wonder if I'm also on too much thyroxine!

SeasideSusie profile image
SeasideSusieRemembering in reply to Jojozo

Jojozo Do you have your test results from when you were first put on T3? I'm just wondering what your conversion rate was, and how low your FT3 was at the time.

Jojozo profile image
Jojozo in reply to SeasideSusie

Hi Susie, I don't have them at the moment because all of my results files are with an acupuncturist I've been seeing, but as soon as I get them back I'll post them. thanks so much.

Heloise profile image
Heloise

Hi jojo, I see you mentioned your high antibodies and lack of treatment. The basic problem is leaky gut and it is very difficult to treat. Your immune system is causing the antibodies. Gluten may be part of the cause.

Your high FT3 level without major over medication symptoms may mean your T3 receptors are blocked. Estrogen, high cortisol or low cortisol might be the basis for this.

You could look up David Clark on You Tube and find "Twenty four Reasons for low thyroid" even though you don't appear to have low thyroid.

But see if you relate to any of these hyper symptoms here: stopthethyroidmadness.com/s...

Jojozo profile image
Jojozo in reply to Heloise

Hi Heloise, thanks so much for taking the time to reply. I have been diagnosed with leaky gut and I was told to cut out gluten, but I do it for so long and then fall off the wagon, which I know is less than ideal. Do you think I should start with the leaky gut and go from there? My levels have been very up and down over the years and my thyroid been diagnosed as underactive many times. But maybe I'm taking too much thyroxine now? Certainly too much T3! I'll have a look at David Clark on YouTube. I think I need to start taking this all a bit more seriously because I'm feeling pretty terrible and very tired at the moment.

Heloise profile image
Heloise in reply to Jojozo

So it appears your hormone replacement is not working for you.

Try to find David Clark s video about progesterone. They are only five minutes and you will gain a great over view of all the obstacles you face. #6 7 8 talk about anti bodies but low progesterone is a large factor as well.

Jojozo profile image
Jojozo in reply to Heloise

Brilliant, I'm going to have a look now. Thanks again!

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