Thyroid UK
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I recently had a hyper thyroid and both of eyes swelled and now protruding. I was tested for thyroid at the time and my TSH was low but I was told not low enough to suggest Graves. I was recently tested again and my TSH, T4, T3 and TSI are all normal so that would suggest no Graves but why are my eyes still protruding? I saw my Rheumy and she said that sometimes test isn't sensitive enough and I appeared like a Graves patient to her. does anyone else here have Graves without the antibodies showing up on test?

3 Replies

Hi there ..

I br given up trying to figure out why tests ... or Doctors for that matter get it wrong .. I was ill for a few years ... I was obviously suffering Graves' disease .. although I didn't know what that meant !!

My symptoms were dreadful

And had bloods tested twice

Seems I was fine .. I felt as though I was dying !!!

Didn't make a fuss .. so NOTHING Was done to help me I arrived at dr crying one day and he took it seriously then !

Graves Disease .. it's not the end of the world though .. you can certainly manage this disease it's a wonky immune system that's to blame put all your energies such as they probably are !! Into supplementing to strengthen and

Take care of your immune system 80 % of which is in your Gut !!!

Your thyroid will eventually be given peace .. and hopefully return to normal .. given there are no underlying conditions

Start by googling supplements fur Graves Disease

They worked for me .. I'm now Euthyroid .. thank God .. you may be too soon

Best of luck

Print your bloods results on here and loads of folk will help you

Don't give up ... know your enemy and fight it

1 like

thanks for your reply. It's good know others have the same blood test but still have symptoms. I also have Sjogren's and now diagnosed with RA. I did lots of research on how to treat SS naturally with foods and supplements. Now I have to research Graves and RA. I sure hope they are the same results and something I do for one disease doesn't hurt another. :)

1 like

My sister is a top scientist whose friend had her bloods sent to Germany.

She had two negative tests here and the last one did come back positive as they are so advanced.

The best of luck to you both it is all about the gut in so many illnesses. Follow how you feel and the symptoms.


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