Graves: Hi I am new, I have pernicious anaemia... - Thyroid UK

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Graves

Emmz2 profile image
10 Replies

Hi I am new, I have pernicious anaemia and I also have Graves disease. Are the 2 connected? Thankyou

TSH 0.02 (0.2 - 4.2)

FREE T4 25.6 (12 - 22)

FREE T3 4.2 (3.1 - 6.8)

Was taking levothyroxine before the Graves diagnosis.

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Emmz2 profile image
Emmz2
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Clutter profile image
Clutter

Emmz2,

No, they're totally seperate autoimmune conditions.

Are you still taking Levothyroxine?

Emmz2 profile image
Emmz2 in reply toClutter

No I came off it 6 weeks ago, new results are

TSH 7.10 (0.2 - 4.2)

Free T4 9.3 (12 - 22)

Free T3 3.0 (3.1 - 6.8)

Clutter profile image
Clutter in reply toEmmz2

Emmz2,

Well you obviously are hypothyroid and need Levothyroxine because FT4 and FT3 are below range and TSH is high.

What reason was given for taking you off Levothyroxine?

Emmz2 profile image
Emmz2 in reply toClutter

Thankyou the reason was because endo did not believe I was ever hypothyroid in the first place with TSH 67.5 (0.2 - 4.2) Free T4 10.1 (12 - 22)

Clutter profile image
Clutter in reply toEmmz2

Emmz2,

Are you saying that s/he did not believe TSH 67.5 with FT4 under range was hypothyroid and took you off 150mcg?

I think patients are going to have to step up and complain about this lousy doctoring. Start by writing a complaint to the head of endocrinology dept. This dickhead has compromised your health and perhaps your ability to work and earn a living.

Emmz2 profile image
Emmz2 in reply toClutter

That is correct.

Clutter profile image
Clutter in reply toEmmz2

Emmz2,

I don't know what qualifies him/her to be an endocrinologist if s/he really thinks that. Please write that letter of complaint. In the meantime, either your GP or endo need to prescribe you Levothyroxine ASAP because you are overtly hypothyroid.

greygoose profile image
greygoose

No, you don't have Grave's disease. If you did, your FT3 would be over-range. Your TSH is suppressed and your FT4 over-range, but you are not even hyper with that low FT3. You have a conversion problem, which is why your FT4 is so high.

I agree with Clutter. This endo should not be in charge of thyroid patients when s/he knows so little about it. You must complain.

Treepie profile image
Treepie

You may find it helpful to join the pernicious anaemia community as well.

Silver_Fairy profile image
Silver_Fairy

Who and when were you diagnosed with Graves?

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