Was diagnosed with underactive thyroid around 15 years ago. Been on 100mcg of levothyroxine for quite a while, but started to go downhill again. After a bit of a battle, was diagnosed with PA last year - had 1 B12 injection per week for six weeks and now have them every 12 weeks. B12 levels are now "high", but still feeling knackered. I wasn't aware, but during blood tests last September they also tested my vitamin D which was 59 - range was 50 to 150 (this was after a nine week break over the summer, so wasn't stuck in an office). Again, blood tests at the end of January and vitamin D was tested again - the level was 16, but I wasn't informed of this. It was only at my last B12 injection that the nurse asked how I was getting on re vitamin D and so I told her I didn't know I'd been tested! Made an appointment with the doctor and she said that January levels were low, but that couldn't rely on them now as that was during the winter when levels are lower - so currently waiting for the results of another blood test before anything will happen.
Sorry, long-winded, but basically can a lack of Vit D make me feel so knackered/brain fog/no enthusiasm for doing things (which is frustrating - hate feeling like that). Also, if I am prescribed any treatment, does it really make a difference? Think I'm looking for a little bit of hope that I could, potentially, start feeling better again.
In addition, TSH was 3.81 - am hoping I can maybe persuade doc to increase my levo dose a bit?
Have also posted this on the PA site.
Thanks in advance for any advice
Written by
Simba01
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You are under medicated. The goal of Levothyroxine is to restore the patient to euthyroid status and for most people this will be when TSH is 1.0 or lower. Read Treatment Options in thyroiduk.org.uk/tuk/about_... Email louise.warvill@thyroiduk.org.uk if you would like a copy of the Pulse article to show your GP when you request a dose increase.
Vitamin D deficiency causes musculoskeletal pain, fatigue and low mood. Post the results and range (figures in brackets after result) in a new question and members will advise how much to supplement. I had loading doses to correct vitD deficiency and hip and knee pain which had been plaguing me resolved after about 6 weeks.
I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.
Thanks Clutter, much appreciated - hopefully light at the end of the tunnel and I'll make sure I take some information with me when my next appointment is arranged.
Best advice is to read as much as you can. Vitamin and minerals levels are very important, but standard NHS thinking, doesn't at the moment seem to recognise this. You will see, time and time again on here lots of information and advice about importance of good levels of B12, folate, ferritin and vitamin D and gluten connection to autoimmune Hashimoto's too.
As you have low B12, you might also have low folate. Has it ever been checked? Lots of people on here who have B12 injections, also take B12 lozenges daily .....some one will no diubt advise.
When taking B12, injections and/or lozenges it's usually recommended on here to also take a good quality Vit B complex (good ones have folate in rather than cheaper folic acid). This keeps the B's unbalance.
Low vitamin D has HUGE impact on uptake if thyroid hormone. You need vitamin D3. A good make eg Solgar. Or you can use mouth spray (eg DLux by Better You) or there are Vit D drops too.
Some start with loading dose from GP. Personally I started slowly and built up.
Read on here....lots about Vit D and its importance, plus how much and why we also need K2 and often magnesium too.
Do you know if you have Hashimoto's - high thyroid antibodies. There are two sorts TPO Ab and TG Ab. (Thyroid peroxidase and thyroglobulin) Both need checking, if either, or both are high this means autoimmune thyroid - called Hashimoto's, the most common cause in UK of being hypo.
NHS rarely checks TPO and almost never checks TG. NHS believes it is impossible to have negative TPO and raised TG. It's rare, but not impossible, there are a few members on here that have this.
Make sure you get the actual figures from any tests (including ranges - figures in brackets). You are entitled to copies of your own results. Some surgeries make nominal charge for printing out.
Alternatively you can now ask for online access to your own medical records. Though not all surgeries can do this yet, or may not have blood test results available yet online.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Feeling tired, (thyroid, testosterone)
Normal bloods still so tired 😞
Feeling anxious and tired
So tired of the battle with useless doctors.
so tired….
