Hi all, just wondered if anyone could give me any guidance on what you would do next in my position- i have a 15yr old daughter who has been struggling for a long time now, she has all the usual symptom's of underactive thyroid, i took her to her doc last june and managed to get her tsh done which came out at 4.66 but because they decided to change the lab chart from 4.5 to 5.0 they would'nt diagnose her, even though we have 9 close family member's struggling with underactive thyroid and she has all the symptom's?? I did ask if she could trial small dose of levo only to be told no, go home exercise and eat orange's????
I'm afraid i was straight to the point and was not happy so we were referred to a pediatrician who has since passed us on to a CFS/ME clinic who have diagnosed my daughter with CFS, which i know some symptom's overlap with thyroid but when you can see her having all the symptom's you have had yourself it's frustrating. Since the 4.66 tsh result she has been tested a few time's and the result's show she is yo-yoing, they have been 2.0, 1.5 etc she has had a few other test's ferritin folate etc but they never agree to T3 and it's difficult to get T4 done. We recently found out she is vit D deficient which is awful on it's own but watching her struggle for the last couple of year's is heartbreaking and i really don''t want her to struggle any more, even though she is doing everything the CFS clinic have asked of her she is no better.
I have been thinking perhap's it's time for private test's but then i read last night that you can pay out for private only for your doc to not recognise the result.
what should i do? i can't just let her carry on as she is! The fatigue has took it's toll but the thinning hair is upsetting for her along with everything else.
Has anyone got any friendly advice-please.