NDT

[tracybet]

Can anyone send me a link of where to buy thiroyd in the uk.

Thankyou Tracy

[SeasideSusie Remembering]

You can't get it in the UK, it comes from overseas.

You said in a post the other day that you had started taking NDT that day. Where did you get that from and was it not Thiroyd?

[tracybet in reply to SeasideSusie]

Hi yes but I was told to be careful because it may not be legit so i was just wondering where everyone got there's from, I got mine from a well known site x

[ Edited by admin to remove reference to specific online source in line with guideline 23. ]

[Hidden in reply to tracybet]

Hi, that is where I got mine from. It is legit stuff and is posted from Thailand.

[SeasideSusie Remembering in reply to tracybet]

tracybet You are right to be cautious. A few weeks ago, on another forum, a member was warning about a supply of Thiroyd she had bought from a large UK selling site (not the auction site) and the seller had the word 'supermarket' within their trading name. She had been taking Thiroyd for years and then got her new supply from this site. When taking the first tablet she felt strange and ill and knew it wasn't the same as normal. She asked the 'supermarket' for proof of authentication and they could not provide it. The large selling site refunded her money. It's not possible to know that these sellers are always providing the genuine article when selling via these large sites.

It's safer to buy direct from overseas from a trusted seller recommended by someone who regularly uses them.

[jamesal0]

I live in Australia but try this

thyroiduk.org.uk/tuk/treatm...

[SeasideSusie Remembering in reply to jamesal0]

jamesal0 All of those pharmacies require a prescription, either NHS or private, tracybet is looking to buy NDT without prescription.

[jamesal0 in reply to SeasideSusie]

That's not what she said - or should i read between the lines. Why would you not have a doc help - blood tests etc. I just don't understand the UK system. I was talking to another UK woman on HealthUnlocked who's doc would only prescribe her 30 days worth of Levo and who was petrified she was going to fail a blood test.

Everytime I go to a doc for anything, they also hand me another 12 month Levo script. At one point I was trying different brands to see if I could getaway from Levo side effects and I still have 3-4 boxes missing 5-6 pills in the fridge .

It's my body - I choose what dosage I take daily - and I choose the dosage that makes me feel good. The Docs always try and push Levo up to get a TSH 0, which makes many feel like death warmed up - but their blood tests are perfect. TSH 4-5 will not kill you.

I'm on NDT now and feeling heaps better - mind you I have to take it 4 times a day - cant tolerate it all in one hit. I phoned around local compounding pharmacys until I found NDT and dropped in and asked them which docs they received prescriptions from. First Doc I visited was fine about it.

HealthUnlocked should put a lobby group together and sort out UK health system - they treat you worse than Heroin or Ice addicts.

[helvella Administrator Thyroid UK in reply to jamesal0]

Thiroyd is actually a product from Thailand. It is not licensed in the UK so is, effectively, unobtainable except by internet ordering.

I get 84 day prescriptions for levothyroxine, but only because I challenged the doctor with good supporting statements from our MHRA.

Yes - the system is poor. But when the doctors don't see the problems it is very difficult to get it changed. For a start, if you try to get the political system working, the first thing they do is ask the doctors. It is very much overcoming that barrier that makes it so very difficult.

[SeasideSusie Remembering in reply to jamesal0]

jamesal0 It would probably take a month of Sundays to explain all about our health service here.

Tracybet can't get thyroid meds prescribed by her GP because her test results are 'in range'. With very few exceptions that is all the docs go by. If you are in range you are fine, your symptoms mean zilch, they are all in your head - that just about sums it up.

NDT isn't really on the radar, it's not recognised by most GPs and Endos. Levothyroxine is the only way to go according to the NHS, with very few exceptions. A handful of enlightened private doctors recommend it and mostly patients have to source it themselves.

There are guidelines set down that the NHS docs have to follow, if they don't follow the guidelines they risk the wrath of the higher ranks, or worse. To find a doc who will treat by symptoms is like looking for hens' teeth, and even then they would need evidence of a rising TSH very close to the top of the range. Generally our range is something like 0.24-4.20 but the magic number for diagnosis is 10. Sometimes a doc will diagnose with an over range, but less than 10, result. Once on meds FT4 and FT3 are generally ignored and dosing is by TSH only. It doesn't matter if your TSH is at the top of the range and you feel dreadful, you're not going to get an increase in meds because you're in range.

This is why you will read a lot about us having private blood tests and buying our own NDT or T3 from overseas without prescription. Quite often, if our GPs know we are self treating then they will have nothing more to do with our thyroid health and they won't do thyroid tests for us, it happened to me 16 years ago.

There are people who can't tolerate Levothyroxine and have previously been prescribed T3 (liothyronine) because it's the only thing that helps them, but now many health authorities are dropping it from their prescribing list because the price has risen from a couple of pounds a pack to over £200 a pack because of money grabbing shisters using a loophole that allows this sort of price rise as there is only one supplier of T3 in the UK. The whole thing stinks.

The government are trying to privatise parts of the NHS, there is not enough money to keep it going, our GPs are trying to spend as little as possible and many people are suffering because of it.

[jamesal0 in reply to SeasideSusie]

I maintain - "they treat you worse than Heroin or Ice addicts". Forcing you underground.

Start lobbying your local MP's, get everyone on this sight to send a std letter. Call up 60 minutes, 4 Corners, get on TV. Your NHS needs a kick in the head.

[Hidden]

I have not done great on thiroyd NDT but the ones I got have all the proper things on the labels, then again it's pretty easy to forge a label. Within 20 mins of taking my first NDT i felt more alert so must have been the correct stuff.

[tracybet]

Hi thanx everyone, well I am on day 6, 1/4 of a tablet a day still getting the afternoon tiredness, but feeling a lot better in myself, managed a 30 minute walk yesterday and done 10 mins on the treadmill today, so I am hoping when I add the other 1/4 in another 8 days will feel even better. Our Doctors are useless when my b12 was really low they didn't treat me and again when my iron was 7, I have been to the docs with all my symptoms and he just said he didn't know what was wrong with me even though I told him since having the partial thyroidectomy I was getting worse and worse , tiredness, weight gain, aching legs, tinnitus headaches ect ect, so rather than argue it's easier to treat myself and do private blood test's, I was going to go and take the private blood test reports with me but I don't see the point because they will only give levo and from what I have read about levo scares me I don't know one single person on it who is doing well on it , so with all that in mind I will just self treat.

[LAHs]

I think the problem is more, "Where can I get a prescription?" rather than "Where can I buy NDT without a prescription?". The answer to the first question is to go round pharmacies/chemists and ask them which doctors in the area are prescribing NDT. Now, that pharmacy may not fill those scripts but they will, at least, know which docs are writing them. Once you have a script it is easy to buy NDT, just look up suppliers on the internet or write to Activis in America - they will give you a list of suppliers (who all need a script).

Just one unfortunate small note. I was paying $30 for my pills (100 1 grain and 50 1/2 grain) They (Activis) recently bumped their price threefold, I now pay $100 for the same amount. This is another good reason to shop around on the internet for lower prices.