Antibodies Help

[Postpartummum]

Hi!

I've been struggling with symptoms since last July. Bloods show I have raised antibodies and ultrasound shows diffusely heterogeneous thyroid. & hashimotos in direct family. No treatment though as tsh & t4 in range. I feel so so poorly with hypo symptoms. I'm wrecked.

My question is, can anyone recommend a private endo who might treat/trial treatment based on anti-bodies? Am desperate.

Latest results:

TSH: 1.8 FT4 10.4 FT3 3.79

TPO >1000

TgA 431

Thank you!

[shaws Administrator]

Sorry you are feeling so bad. You would do so with antibodies and if you email [e-mail] and ask for a copy of Dr Toft's Pulse Online article.

He was President of the British Thyroid Association. Highlight question 2 where he states that if antibodies are present we should be given levothyroxine. At least that would be a start.

[Postpartummum in reply to shaws]

Thank you SO much that's brilliant.

[shaws Administrator in reply to Postpartummum]

Ignore his last para on this section - it's rubbish and really shows what they think about us, poor souls.

[Postpartummum in reply to shaws]

Thank you!

[Postpartummum]

Would love a private endo recommendation too!

[shaws Administrator in reply to Postpartummum]

email [e-mail] who has a list.

[Josiesmum]

I've read here that a gluten free diet and selenium supplementation can reduce antibodies:

thyroidpharmacist.com/artic...

thyroidpharmacist.com/artic...

There is loads of great info in this site, well worth reading through posts.

[Postpartummum in reply to Josiesmum]

Thank you. I'm taking selenium. Negative for celiacs too.

[Josiesmum in reply to Postpartummum]

There is a lot of info on here about non-celiac gluten sensitivity. Only a small percentage of people who are sensitive to gluten actually have celiac disease. Here's some more info:

thyroidpharmacist.com/artic...

[Clutter in reply to Postpartummum]

Postpartummum,

It's highly unlikely that NHS will diagnose and treat hypothyroidism until TSH is over range or FT4 below range, and it is unlikely that a private endo will diagnose and treat while TSH is <3.0.

The best thing you can do is to go 100% gluten-free for a few months which may improve symptoms and reduce antibodies.

chriskresser.com/the-gluten...

thyroiduk.org.uk/tuk/about_...

[Hidden in reply to Josiesmum]

I've been gluten free since the end of last September and take selenium daily. I have lost 24 lbs in that time. My anti bodies have reduced down to 127 from 211 in that time.

[greygoose]

Those Frees look awfully low, Have you got ranges for them?

[Postpartummum]

9-25 (10.4) Ft4

3.1-6.8 (3.79) Ft3

Thank you.

Agreed they're low. They dropped from 16.8 to 10.4 between July & Sept and stayed there. Tsh won't budge from between 2.4 & 1.8

I'm 14 months postpartum now also.

Am going to try gluten free to see if it helps. Anything worth a go!