I've been struggling with symptoms since last July. Bloods show I have raised antibodies and ultrasound shows diffusely heterogeneous thyroid. & hashimotos in direct family. No treatment though as tsh & t4 in range. I feel so so poorly with hypo symptoms. I'm wrecked.
My question is, can anyone recommend a private endo who might treat/trial treatment based on anti-bodies? Am desperate.
Latest results:
TSH: 1.8 FT4 10.4 FT3 3.79
TPO >1000
TgA 431
Thank you!
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Sorry you are feeling so bad. You would do so with antibodies and if you email louise.warvill@thyroiduk.org.uk and ask for a copy of Dr Toft's Pulse Online article.
He was President of the British Thyroid Association. Highlight question 2 where he states that if antibodies are present we should be given levothyroxine. At least that would be a start.
There is a lot of info on here about non-celiac gluten sensitivity. Only a small percentage of people who are sensitive to gluten actually have celiac disease. Here's some more info:
It's highly unlikely that NHS will diagnose and treat hypothyroidism until TSH is over range or FT4 below range, and it is unlikely that a private endo will diagnose and treat while TSH is <3.0.
The best thing you can do is to go 100% gluten-free for a few months which may improve symptoms and reduce antibodies.
I've been gluten free since the end of last September and take selenium daily. I have lost 24 lbs in that time. My anti bodies have reduced down to 127 from 211 in that time.
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