Antibodies Help: Hi! I've been struggling with... - Thyroid UK

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Antibodies Help

Postpartummum profile image
13 Replies

Hi!

I've been struggling with symptoms since last July. Bloods show I have raised antibodies and ultrasound shows diffusely heterogeneous thyroid. & hashimotos in direct family. No treatment though as tsh & t4 in range. I feel so so poorly with hypo symptoms. I'm wrecked.

My question is, can anyone recommend a private endo who might treat/trial treatment based on anti-bodies? Am desperate.

Latest results:

TSH: 1.8 FT4 10.4 FT3 3.79

TPO >1000

TgA 431

Thank you!

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Postpartummum profile image
Postpartummum
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13 Replies
shaws profile image
shawsAdministrator

Sorry you are feeling so bad. You would do so with antibodies and if you email louise.warvill@thyroiduk.org.uk and ask for a copy of Dr Toft's Pulse Online article.

He was President of the British Thyroid Association. Highlight question 2 where he states that if antibodies are present we should be given levothyroxine. At least that would be a start.

Postpartummum profile image
Postpartummum in reply toshaws

Thank you SO much that's brilliant.

shaws profile image
shawsAdministrator in reply toPostpartummum

Ignore his last para on this section - it's rubbish and really shows what they think about us, poor souls.

Postpartummum profile image
Postpartummum in reply toshaws

Thank you!

Postpartummum profile image
Postpartummum

Would love a private endo recommendation too!

shaws profile image
shawsAdministrator in reply toPostpartummum

email louise.warvill@thyroiduk.org.uk who has a list.

Josiesmum profile image
Josiesmum

I've read here that a gluten free diet and selenium supplementation can reduce antibodies:

thyroidpharmacist.com/artic...

thyroidpharmacist.com/artic...

There is loads of great info in this site, well worth reading through posts.

Postpartummum profile image
Postpartummum in reply toJosiesmum

Thank you. I'm taking selenium. Negative for celiacs too.

Josiesmum profile image
Josiesmum in reply toPostpartummum

There is a lot of info on here about non-celiac gluten sensitivity. Only a small percentage of people who are sensitive to gluten actually have celiac disease. Here's some more info:

thyroidpharmacist.com/artic...

Clutter profile image
Clutter in reply toPostpartummum

Postpartummum,

It's highly unlikely that NHS will diagnose and treat hypothyroidism until TSH is over range or FT4 below range, and it is unlikely that a private endo will diagnose and treat while TSH is <3.0.

The best thing you can do is to go 100% gluten-free for a few months which may improve symptoms and reduce antibodies.

chriskresser.com/the-gluten...

thyroiduk.org.uk/tuk/about_...

in reply toJosiesmum

I've been gluten free since the end of last September and take selenium daily. I have lost 24 lbs in that time. My anti bodies have reduced down to 127 from 211 in that time.

greygoose profile image
greygoose

Those Frees look awfully low, Have you got ranges for them?

Postpartummum profile image
Postpartummum

9-25 (10.4) Ft4

3.1-6.8 (3.79) Ft3

Thank you.

Agreed they're low. They dropped from 16.8 to 10.4 between July & Sept and stayed there. Tsh won't budge from between 2.4 & 1.8

I'm 14 months postpartum now also.

Am going to try gluten free to see if it helps. Anything worth a go!

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