Hey all, I'm new here. I've had some weird blood test results, and my endo doctor says he no longer knows what to do.
Would love some help or information that anyone can give me.
Thyroid problems run in my family, i was first diagnosed during pregnancy and put on a low dose of PTU. The hyperthyroidism went away and didn't come back until about 8 months post partum.
8 months post-partum, Dec 2015 - FT3 and FT4 were very high (FT3 non-measurable at over 30.8 pmol/L, normal range 3.5-6.5. FT4 was 73, normal range 10.3-19.7), and my TSH virtually non-existent (less than 0.03).
I was put on 5mg methimazole (low dose bc i was nursing) and 40 mg prolol a day. I gradually weaned off prolol as my heart rate stabilized and methimazole kicked in. FT3 and FT4 were still out of range so the doc upped the methimazole dose to 15 mg a day, and after additional testing to 40mg a day.
FT3 went down to normal range, FT4 was suddenly HYPO dropping from 63.5 to 6.5 (normal range 10.3-19.7) in 2.5 weeks. Whereas FT3 went down from over 30.8 (unmeasurable) to 4.6 (normal range 3.5-6.5). TSH still less than 0.03.
When we slightly reduced methimazole dose to fix sudden hypo tendency, FT3 went right back up to out of range: 7.37, and FT4 remained hypo and even got worse: 8.2. How can i be hyper and hypo at the same time? And both of them getting worse despite the meds?
Doc added naproxen to the mix to treat the hypo which he thinks is inflammation, and to help swelling and pain in goiter.
Just got the newest blood test results back and they read: TSH still less than 0.03
(is this not strange?!) FT3 higher up at 9.3 (normal range 3.5-6.5). FT4 no longer hypo, in normal range at 13.5 (normal range 10.3-19.7).
Doc wants me to continue methimazole and naproxen although he thinks the naproxen is useless.
I am starting to get really worried because the doctor says i am an unusual case and that i'm not reacting like people usually do, and that he doesn't know what to do next. (what kind of doctor says this to their patient? im really starting to freak out)
Possibly I have underlying Grave's disease, as well as postpartum thyroiditis at the same time. Postpartum thyroiditis apparently causes hyper, then hypo and then evens out in the year following birth. So right now I am hyper and hypo, together, but TSH still non-existent. Is it possible to have both conditions at the same time?
In terms of symptoms, it's been a rollercoaster of anxiety and/or depression, immense fatigue, shakiness, weight loss, weight gain, and more.
Feeling a bit like a guinea pig here, especially when doc is experimenting and says he doesn't really know what is happening.
I would love to hear of similar experiences that may shed some light, as well as anything underlying or other tests that you think may help.
Thanks a lot in advance!!