Hypo to hyper! : History: diagnosed Hashimotos... - Thyroid UK

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Hypo to hyper!

Butterfly87x profile image
7 Replies

History: diagnosed Hashimotos following birth of first child, began thyroxine 50mg, now two years later following birth of second child my thyroid results are as follows:

Tsh: -0.01miu/L

Ft3: 12.14pmol/L

Ft4: 27.98 pmol/L

So now I’m hyper, with all the horrible symptoms.

Stopped thyroxine and having to retest bloods again in few weeks to determine if it’s a case of over medication (I’m pretty sure this isn’t the case), Graves’ disease or possibly postpartum thyroiditis.

Any advice is helpful as I’m more clued up on hypo than hyper.

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Butterfly87x
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7 Replies
SeasideSusie profile image
SeasideSusieRemembering

If you have a diagnosis of Hashimoto's, this is more likely to be a Hashi's "hyper" swing than Graves, maybe triggered by the birth (was it recent?)

If they want to label you with Graves disease, insist on them testing Graves antibodies - TSH/TRAbs - that's the only way to confirm Graves.

Butterfly87x profile image
Butterfly87x in reply toSeasideSusie

Yes the birth was 5 months ago so pretty recent, so yes my opinion also is that it’s based on being postpartum but will be testing for graves antibodies just to be sure.

Butterfly87x profile image
Butterfly87x

Also my other query is that one Dr advised me to stop medication and repeat bloods in three weeks, another dr told me to reduce from 50mg to 25mg and then repeat the bloods.

Obviously I want to do the one that will make me feel better quicker and as of right now I have all hyper symptoms so to me taking 25 makes me think that will make them worse.

Any advice?

danym profile image
danym in reply toButterfly87x

i would stop the meds and see how you feel and retest. Are you breastfeeding? while I was breastfeeding my tsh kept going up, so opposite to yours.

Butterfly87x profile image
Butterfly87x in reply todanym

No not breastfeeding anymore my baby had to have a stay in hospital at 1 month old and my milk dried up.

SilverAvocado profile image
SilverAvocado

You don't give ranges, but this freeT3 looks like it's high. However like others I'd be suspicious of whether you've developed Grave's, because it's not super super high.

It's possible you're having a Hashimotos flare up, which dumps extra hormone into the blood. It's also possible that your need for thyroid hormones in the first place was short term, and your body has taken its time about starting to complain.

If I were you I'd consider giving up the whole 50mcg. Or ideally by taking it a little slow, dropping to 25 for maybe 3 weeks and then down to nothing.

One thing to be very careful about, I wouldn't let any doctor take your blood after only 3 weeks on a given dose, especially if you're reducing which is a slower process than increasing. Best practice is to wait 6 weeks. After 3 weeks your numbers will be absolutely up in the air and very innaccurate.

As others have warned, be very cautious not to get diagnosed with an over active thyroid (Grave's) too quickly. Doctors often don't have great thyroid knowledge, and will make knee jerk diagnoses.

Butterfly87x profile image
Butterfly87x

Sorry these are the results with the range

Ft4 27.98 (range 9-19)

Ft3 12.14 (range 2.63-5.7)

This is the thing I’m confused about I haven’t been able to find any info online about what is considered really high for t3, like dangerously high.

I’m off the meds now for a week but I have to travel next week for two weeks and I’m worried in case my levels continue to rise while I’m away.

Does anyone know is there serious risk with these results or what is the level of serious risk.

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