For the last 4 weeks I have had a metallic taste in my mouth, and now my husband is telling me he can smell it on my breath too.
Does anyone else have anything like this, I just googled it and got worried as it said could be linked to liver disease and I do have a cyst on my liver and also a Gallbladder polyp.
Help !
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jlat
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Thanks I def have no oral or other problems mentioned in link but I do have Hashis and wondered if it may be linked somehow or a cancer or renal hepatic issue im unaware of,
I've noticed a strange odor with some people on acid reducers like prevacid. Do you take those? This is for salty mouth but some tips which might help.
Thanks ,I fear it may be another auto Immune Srojdgens,I have v dry mouth and eyes ,waiting for bloods to confirm,I already have Hashis Thanks so much I very much appreciate all your support X
Jlat, sometimes the symptoms are all related to being hypothyroid. Are you doing well with your hormones if you have it. Also, I've read that a vitamin A deficiency causes dry eyes. Medications often cause dry mouth. It's just a matter of figuring out your body's needs.
Thanks Heloise Im on no hormones at all,and wonder if I should be? ,iam trying to manage with the iodine supplement my GP gave me (liquid seaweed) 10 mls a day ,im gluten free dairy free,alcohol free and take a zillion supplements, waiting on some new antibody blood results which I have to wait a month for as Im in New Zealand and they do not do them here.I have a lot of liver pain ,rash intermittently dry mouth and eyes ,lots of random other stuff ,but now ive had this taste for last few weeks I think what next!
Oh my j! Do you have hypo symptoms and can you get some thyroid function tests? Well, you do have some signs of something like the liver cyst. I've been posting you tube videos by John Bergman. He is extremely knowing about anatomy and function of just about everything and seeks the cause of some of those signs. Normally I put the adrenal/thyroid video on here but I'm sure he has others that may apply to you. I haven't watched this one yet.
also have a bad taste mouth, plus nausea that comes and goes, and going off certain foods. even finding it hard to think about food or prepare it sometimes. which may be a good thing as it will help me to lose weight. it can all be related to hormones out of balance and ive read other posts on other forums by people with underactive thyroid who have these issues.
Thanks that is so reassuring as there is so many random symptoms I wondered if anyone else had some of mine I really appreciate your comment cheers Jlat
Hiya ... Do you have any gold crowns on your teeth ... I get a metallic taste from time to time and my dentist has told me it's due to a hairline crack in my crown which is now leaking a metallic taste ... He said it will need to be replaced soon but it the metallic taste gets worse he will do it sooner...., not sure if this helps
Jlat ive just found this post. I have had a bad taste for five years now. I assume it's something to do with my upper GI problems - acid reflux etc. I also have bruxism and widespread neuropathic problems which include my mouth and nose. I'm told I don't have Sjogrens but might have Vasculitis - wondering if you've ever seen a rheumatologist for this as it can be very hard to diagnose, Sjogrens is sometimes seronegative so antibodies may be detectable from a lip biopsy if you can face having one. A good rheumatologist is the best person to help you I feel. Best of luck tracking your symptoms down.
Ps I also get a lot of dryness and crusting in my nose which causes me to wake up with blood in mouth - another possible cause with me.
Thanks again for your advice,I believe I have sjrogens even though I have no antibodies it's all a puzzle,hope you are ok too , sometimes it's all so big! I yearn for my pain free worry free days
Hi jlat I hope you found some relief, and a full diagnosis following this post? I hope you don't mind me adding to it- I've had the metallic taste for a week now, it's so strong. Happens most of the time I eat and is followed by a headache.
I am on 75mg levothyroxine and also have dry eyes and bruxism (I not long ago started with tinnitus too so sleeping can be difficult). I have tested negative for Sjogrens antibodies and the doctors have said just to wait and see if it gets better. I am so puzzled and a bit scared. Can you advise based on your experience?
Sorry to hear you share my symptoms.Currently had a few weeks of ghastly metal taste and black tongue induced by heavy drugs to treat stomach lesions (which I am assuming are SS based)Normally like to go the natural route however with big C word mentioned if i dont treat them now as a precaution to halt metastatic change ?.
Anyhow I prior to this treatment still had the taste often as in a few days a week at least and the taste of everything is altered.I probably have it all the time and have adjusted and it becomes worse some days on further thought. I was scared alot too to start and then realized what a giant puzzle it all is to all of us including most of the Dr's the treatment and diagnosis is all over the place for many of us hence on this forum we tend to look to self help for the answers,many on this forum are incredible knowledgeable and I follow almost all of the advice given to me ,after all we are all travelling a similar path at varying times.
Try not to worry ,that definitley makes Hashis and SS flare or increase symptoms and severity and I truly believe all the stress and worry over all this over the last 24 months on top of my Mum dieing has caused this stomach issue,hopefully sorted now.
I have limited access these days to a computer but if you ever need anything please reply to this post or pm me and I will get an alert.All the very best and know that I def have more good days than bad (mostly) and KEEP OFF Gluten it is a real trigger for me and can set me back weeks Jlat XO
Thanks for replying. I'm so sorry for everything you've gone through, both with your health and your mum passing away. I hope things improve quickly for you now your stomach ulcers are operated on. I think stress may be part of the picture for me. I generally feel ok but I have been struggling with infertility for the last few years and last year did two IVFs, one ended with a fail and the other with a miscarriage. I've now got to decide whether to go through another one but with new mysterious symptoms all the time it's hard to feel healthy enough to feel like we have a fighting chance. I get a lot of pains in my left side (from the bottom of my ribs to level with my tummy button) so worry about what that is too, but the doctor thinks it's probably IBS and given me laxido. This has reduced constipation but I still get the pains. I avoid gluten, caffeine, alcohol and soy (I have endometriosis and soy). I have also reduced sugar and dairy, but still eat cheese. As almonds was the snack I had when this taste started I wonder if I've developed some kind of nut allergy from all the almond milk I drink. I've also halted my supplements for now with this metallic taste thing - it's so hard not to react and assume it's something I've been taking.
I'm going to ask to see a rheumatologist as I think I could be starting with Sjogrens too. I've had my b12 tested and that's fine- I hope you've had this tested too?
If I get insights on my case I will be sure to share them here in case they can help. Thank you once again. Wishing you well x
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