Thyroid Help: Hello, I have been reading on... - Thyroid UK

Thyroid UK

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Thyroid Help



I have been reading on thyroid, t4, t3 for over 2 years now, and have finally decided to put my sh*t in writing and ask.

2 years ago, I had an issue with a nodule on my right side of my thyroid. My dr. told me he would need to remove the right side due to the fact he could not rule out cancer because of the type of nodule? Anyway, I was scared and had the surgery done. The next morning, I woke and felt extreme pain on my left side. My dr. called me and asked me to come in to see him. I went in, to find that he removed the wrong side, hence my left side killing me. I should have done so many things different!! Like never had the surgery to start. Anyway, the surgeon, advised I have the surgery done to remove the right side, again, saying Cancer....I had it done by another surgeon, I was petrified. Anyway, to date, I have not been able to find a dr., to understand I am NOT the same person. My question: what are your thoughts on my stopping synthroid altogether and staying on the t3, I purchased myself, as 5 dr's have laughed at me and said they would not prescribe t3 because it does nothing.

6 Replies

IWelcome to our forum and your story is quite horrific. If you copy and paste some of the important things above and put them into your Profile, then members in future don't need to keep asking you questions.

First of all I am so sorry for you due to their negligence that you now have no thyroid gland at all. You are correct that Synthroid might not be making you better.

There's no reason you cannot try T3 only. I have a thyroid gland and it makes me feel very well indeed.

You can do it yourself and when stabilised you only need a yearly blood test as you should make sure you are aware of your body's needs.

When you begin T3 only you should take a record of your pulse/temperature several times a day. If you get palpitations or high temp at any time you have to reduce back to the previous dose. You should be aware of any new symptoms and as you increase dose slightly every few weeks. things should get better.

You should also have a blood test for Vitamin B12, Vit D, iron, ferritin and folate as we can be deficient which deficiency can also cause symptoms.

If you take 100mcg of levo, you'd supplement with 25mcg to start gradually increasing every 2 weeks with a 1/4 tablet until you feel better.

I am not medically qualified so the info above is about my own experience so hope you will find you can improve your life. It would be good if you can find a doctor who could support you but with five doing nothing sometimes it is best on our own.


amymmarcello in reply to shaws

I am on 112 mug of Synthroid. Do you think I can just stop taking the synthroid and supplement with the T3, I purchased? I understand you are not medically qualified, I am just looking to bounce stuff off of. I saw another dr on Thursday and I am all done. I even asked her why do you people on base your job on blood results and not what your patient is experiencing. She had a blank stare and no response. I felt like I was talking to an ALIEN!!!

shawsAdministrator in reply to amymmarcello

The usual method, if already on synthroid (levothyroxine) is a straight swop over. So if you take synthroid usually when you get up, just take 25mcg of T3 instead. It's as easy as that. Bearing in mind your temp/pulse. You take it with one glass of water and wait about an hour before food. After two weeks if you feel a symptom or two you can add 1/4 tablet. You might not need an increase as long as you feel well.

If you prefer to take a night dose you take it at bedtime and last have eaten about 2.5 hours previously. If you get blood tests you leave about 24 hours between your last dose and the test.

Also there is another product called Natural Dessicated Thyroid Hormones which have been in use in various forms since 1892 but Big Pharma's monetary incentives to doctors have made sure it has practically disappeared but due to many not getting better on synthroid (levo) worldwide it is becoming popular again as it contains all of the hormones our natural healthy gland would have provided.

Just concentrate at present on T3 and getting and feeling better.

amymmarcello in reply to shaws

Thank you, thank you, thank you.

jannah in reply to shaws

Hi Shaw

Where can you get NET from.

What are the side effect if any?

If anyone who has taken it then what changes have you seen or noticed.

Hope to hear from you.

Amymmarcello, You have to wonder what planet these idiots are from when they say T3 is a placebo. Why would thyCa patients be prescribed T3 in between thyroidectomy and RAI if it is a placebo?

I was very unwell on Levothyroxine (T4) after thyroidectomy but I'm well on T4 plus T3. Thyroidless patients often need some T3 in addition to T4 to deliver good FT3 levels. Before switching to T3 why not try Synthroid plus T3? If you post your recent TSH, FT4 and FT3 results and ranges members will suggest how much T3 to add and whether Synthroid dose needs reducing.


I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

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