thyroid pain

[bossbird]

help for the past few weeks I've been having awful pains in the right side of my thyroid so bad it wakes me my glands are swollen and its started my teeth to ache, the only change in meds is the past 5 months i've been t3 only

[Hidden]

Have you visited your dr?

[shaws Administrator]

Your doctor will probably say it's due to T3 but how are you feeling otherwise, being on T3? Maybe your GP should palpate your neck - what dose are you taking and maybe ask him for a blood test.

[bossbird in reply to shaws]

hi got an appointment on the 9th March, t 3 is the best for me although I did read somewhere that perhaps its the thyroid waking up after being on the wrong meds

[shaws Administrator in reply to bossbird]

I wish you well in your appointment. Not long to go now.

[Jaybrooke]

Thought this excerpt may help, " Normally hypothyroid disease does not cause localized pain in throat or neck or referred pain to the face or dental structures. One exception that occasionally occurs is the pain that arises from hashimoto thyroiditis which is an autoimmune inflamatory disease of the thyroid gland . It can cause painful or tender enlargement of the thyroid and in a small percentage of cases pain can be referred into the mandible or other submandibular sites. NOTE : the mandible is the lower jaw, submandibular is the area below the lower jaw" . No doctor or endo knew this fact and all said the same thing to me , ' there must be another reason for this pain , it is not related to your thyroid' hmm ! oh yes it was !!

[shaws Administrator in reply to Jaybrooke]

Great response. I didn't know what or where a thyroid gland did. Neither did any of the doctors/specialists I saw either and remained undiagnosed. None did a blood test for thyroid hormones.

[annie-7]

Hi bossbird, I have had the same type of pain you describe for over 15 years.

Yes, I did go to my Dr. (a total prat who has now retired!) and he made nothing of it at all, wasn't interested. During this time I was passed between Doctor and Dentist, each of them saying it was nothing to do with them. Turned out my Dentist was right!

Fast forward 15 to 20 years, a new Dr., a diagnosis of Hypothyroidism. The only thing that stops the pain is adequate T3. Levo made symptoms worse. I only get the pain now if I'm late taking the T3, I do too much or if I need a small increase in T3. For info I am taking a combination of T3/T4.

[Jaybrooke]

Hi shaw, it amazes me how little gps and doctors know about thyroid illness. over the 20 years I have been ill  I learnt from bitter experience all they know is to send bloods for testing and read the results if they are normal that's an end to it , it doesn't matter that the long list of awful symptoms point directly to thyroid disease , the bloods according to them , prove there is nothing wrong with your thyroid ! If they listened to the patients signs and symptoms as they used to do prior tor these so called 'gold standard ' blood tests and gave a trial of thyroid hormone replacement , there would be far less people suffering from the most dibillitating illness !!!! I read a statement from dr utiger the clinician and researcher who developed the TSH and T4 blood tests he says"I hope doctors are still being doctors and not diagnosing by these blood tests alone . They need to take notice of signs , basal temperature , symptoms and a trial of T3 " !! It took 19 years for me to be given the correct diagnosis , not ME/ CFS/FIBRO but hashimotos !! I self medicate now with thyrogold , thyroxine helped but never cured all my symptoms , T3 and NDT were a definite no no from endocrinoigist so I was left with no option but to self medicate and now a year on I have none of the awful symptoms I had suffered with for all those years !! Advice from this forum went a long way to help me try NDT and my choice was thyrogold ( dr John Lowe) , this is the best I have felt in 20 years so will continue with it and pray it never goes out of production .