Round and round in circles...: I am getting so... - Thyroid UK

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Round and round in circles...

puffyface profile image
4 Replies

I am getting so stupid these days that I managed to write a post half an hour ago, and then lost it! Anyway, I'll try again....

I am getting more and more confused and would be very grateful if somebody could have a look at the blood results below and let me know what they think.

Briefly, I was diagnosed just before the summer last year with hypothyroidism and given 25mcg of levothyroxine. Very quickly, I began to feel ill with lots of symptoms. My dose was increased to 50mcg and I was sent to an endo...still feeling rubbish. After more blood test, the Endo said that I had other autoimmune issues and sent me to a Rheumy without changing my thyroxine dose.

Eventually, I have been diagnosed with Lupus, sjorgrens as well as Hashi's. I am taking meds for the other things.

At the beginning of December, my GP added 20mcg of t3 to my meds (I reduced my t4 from 75mcg to 50mcg and added 20mcg of t3) and I began to feel almost normal most days. However, last weekend I started to feel really dreadful again..and still am....lots of symptoms.....but also really hot, tingly hands and feet (especially at night) and painful, aching and tingling legs and arms. I saw my GP last week who took thyroid bloods (below) and am seeing endo and rheumy later this week.

My question is, from the bloods below, does it look like it's my thyroid causing the problem? I don't know whether it's one thing or the other and the doctors pass me back and for the to each other.

Any advise on whether these bloods look ok would be very gratefully received. If they do, then at least i'll know that the problem lies elsewhere.

total thyroxine (T4) *52 (range 59 - 154)

TSH 1.53 (range 0.27 - 4.2)

Free thyroxine *11.1 (range 12.0 - 22.0)

Free T3 4.9 (range 3.1 - 6.8)

Thyroid peroxidase antibodies *285.8 range (0 - 34)

I would be incredibly grateful for any thoughts.

Many thanks.

Lx

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puffyface
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4 Replies
Marz profile image
Marz

Could it be B12 ? When levels are LOW it can become a neurological condition - with the symptoms you describe. When having it checked - also ask for the Ferritin - Folate - VitD. They need to be optimal rather than bumping along the bottom of the range.

You could possibly be helped with a small increase of T3. Your FT4 is below range as you are taking T3. Am not sure why your T4 was reduced as it was quite a small dose. It is a storage hormone - so now your store is depleted.....

b12deficiency.info/signs-an...

puffyface profile image
puffyface in reply to Marz

Thank you Marz. Do you have time to explain what you mean by the store being depleted? That makes perfect sense as I was feeling so good.....and now not!

Marz profile image
Marz in reply to puffyface

T4 is a storage hormone and will last in the system for some time. Around 6/8 weeks I have read. At the higher dose you may have had enough T4 - then the reduction - which could have depleted the amount in store - and created some of the symptoms you describe. On the other hand the T3 should have compensated. Some people do need both. Sorry if its confusing - difficult to describe what is in my head sometimes :-)

puffyface profile image
puffyface

Thank you so much. My head is always in a fog at the moment, so it's really helpful to have some knowledge before I go back to the doctor. Not sure I can cope with this for much longer.....so am really, really hoping he can help. x

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