Hi, As I have posted a few times before, I have been having a lot of problems with various batches of liothyronine over the past sixteen months. I've been prescribed lio for the past thirteen years.
I now believe that some time in 2014 following the company's merger with other companies in Europe, it changed the formula of the mixer it uses with these tablets. I react badly to something in the new formula. As these tablets have a two year expiration date, any tablets now available will have the new formula mixer.
I emailed Amco at the beginning of December and yellow carded the batch I was taking. I have sent samples to both amco and the defective drugs administration in London. Amco have spoken to my GP ( with my consent. ) I have heard nothing back from either of them. My Gp made it clear he would not talk about what was said to Amco.
The defective drugs administration pointed out to me that it is impossible to make any drug that suits every one. There is always going to be a small number of people that can't tolerate it. Whilst this is true, it ignores the fact that I took this drug for twelve years with absolutely no problems. The problem is that it's formula has changed.
I had to wait a week to get an appointment with one of the partners from my GP surgery rather than with one of the locums. Last Monday, I asked my GP to prescribe a 10mg capsule alternative. ( American I think ) He pointed out to me that the surgery had received an unexpected £300,000 cut to it's annual budget that morning. My timing was clearly lousy! He said that I'd given him a challenge as he did not know how to prescribe this to me on a named patient basis. I told him this was urgent as I run out of my current batch of tablets in a couple of weeks. He told me that it would take him a, "day or two" and then someone would telephone me. I felt reasonably happy - I'd hoped for a prescription there and then but doubted I'd get it. It seemed quite positive.
I hadn't heard anything by last Friday morning so rang the surgery. There is a note on the computer that a 10mg capsule is being looked at. The pharmacist told me he would investigate and phone me back pm.
He did not call. I rang again today. This time it was made clear to me that four members of staff including the practice manager are looking at this - I should be grateful was clearly the attitude. I will be contacted when there is something to tell me. I said again this was very urgent. I was also told I should see a doctor concerning an alternative - as if this would be happening if there is a UK alternative!! When I said I was really stressed about this, I was told maybe I should see a doctor and get something for it!!! I asked if I could speak to one of the four people who were looking at this so I could find out what the situation is, I was told, "No you can not."
I've read on line that it can take two to three weeks for the pharmacist to obtain a special order. Does anyone know if it really does take this long? I haven't got three weeks and have just under two weeks.
Does anyone know what my right are? Can I demand that my GP prescribe this for me? My fear now is that I'm just being strung along by the surgery and I have no idea what I can do about it.
I really feel miserable and the stress has caused a constant head ache and I'm laying awake a lot of the night and getting really tired. It's not my fault that the formula has been changed. Amco won't even admit it has changed.
I would really appreciate some help.