Morning all, after a bit of advise please as yet again feeling totally horrendous, this illness is like some form of torture that I would not wish on my worst enemy, periods of feeling really well, although brief, followed by hitting the lowest rock bottom I think I can find!!
Bit of background had RAI for toxic goiter/hyperthyroidism in Feb 2015, ( that I regret every day) would prefer hyper any day of the week compared to this hypo horror.
My levels gradually fell in to the hypo range TSH 5.3 (0.4-5) T4 17, T3 3.2, so I was started on levo 25mg in September 2015, felt worse for the first week then felt really good for about 6 weeks, then all hypo symptoms returned, so increased to 50mg, once again picked up, until just before Christmas when I became really poorly with what was thought to be a kidney infection, although this was inconclusive, just had a kidney scan waiting for the results. at the beginning of Dec my levels were TSH 0.8, T4 18, T3 4.5, so on paper pretty good, & although I felt tired & a bit foggy headed I was reasonable.
I can now honestly say I have never felt so horrendous, I seem to swing between being freezing cold & really hot, am exhausted but can't sleep, my brain feels like it won't function, but the most horrendous symptom I am suffering is just dreadful anxiety, this is something I have never endured before, its that bad I feel like the world is about to end, or I will drop dead at any moment (apologies if that is rather over dramatic) I have sent my bloods off this morning, as I am sure it has to be thyroid related. Just prior to Christmas I did try to increase my Levo to 75mg, but felt almost toxic with it, I had this chemical taste in my mouth, so I dropped back to 50mg
Apologies if this is some what of a ramble on, but would appreciate peoples opinions, I bought some thyroid S some time ago & wondered weather to give this a shot, I may be clutching at straws, but feeling just desperate.
Oh forgot to say, have also had lots of other tests done, Ferritin was 20, so low, taking liquid iron for this, but only managed to raise it to 22, cortisol is on the lower side, but 'normal', unfortunately I don't have the figures.
Thanks in advance Jayne