Thyroid levels: Hi all just had bloods back... - Thyroid UK

Thyroid UK

141,245 members166,500 posts

Thyroid levels

Romany profile image
5 Replies

Hi all just had bloods back ...Free T4 = 28.5.... TSH = 0.5 ...My Rheaumy said " your thyroid is all over the place " then dismissed it ( as not her concern ) reduced Levo down to 100mcg from 125mcg.......I have eye problems blurry vision and one eye noticibly larger than other ( shows up particularly in photos ) my Skin is awful dry / flaky. My hair has thinned dramatically. My energy level is 0 I'm so fatigued all the time...I cannot cope with even the slightest stress. I have Hashimotos, Hypermobility Syndrome, Fibromyalgia, Gout Uric Acid levels 439 / inflammatory arthritis, Osteoarthritis, my kidneys are not functioning well Creatinine 92 ( had kidney stones in past ) I cannot lose weight ( at least 3 stone overweight ) ...I'm falling apart any pointers please.

Written by
Romany profile image
Romany
To view profiles and participate in discussions please or .
Read more about...
5 Replies
shaws profile image
shawsAdministrator

I would advise not to reduce your medication (I am not medically qualified) but they only pay notice to your TSH.

Adjusting doses according to the TSH alone (and not your symptoms if you felt very overdosed) is wrong and can rebound on us with even more/severe clinical symptoms. You might feel better with the addition of some T3 to your T4 or NDT You have a lot of clinical symptoms. I think you may be underdosed.

Read first two q/answers in this link:-

web.archive.org/web/2010112...

Read the question dated December 18, 2003

web.archive.org/web/2010112...

web.archive.org/web/2010112...

Musicmonkey profile image
Musicmonkey

Do you have an Endocrinologist looking after you? A good one - who knows what he/she is talking about? It sounds like you need someone to look into your many symptoms and to sort out the thyroid.

Interesting that the 'Rheaumy' dismissed the thyroid aspect as not her concern, yet decided that she knew enough to reduce your meds!

If you don't have an Endo currently, email louise.warvill@thyroiduk.org.uk for a list of sympathetic endo's.

Hope you get some answers - your situation sounds desperate.

Romany profile image
Romany in reply toMusicmonkey

Hi thanks, no I'm not seeing Endo at moment. I should have mentioned I'm also stage 3 CKD ...slightly worri d as start on Allopurinol tomorrow and medicines and I do not get along...Allopurinol needs careful monitoring for adverse reactions. ...I have written to my GP asking him to refer me to Enocronologist who is thyroid experienced.

Musicmonkey profile image
Musicmonkey in reply toRomany

Romany make sure that any Endo you see is on Louise's list. With all your health issues I feel you really need someone who is fully knowledgeable about the thyroid. Sadly, not all Endo's are that helpful.

Marz profile image
Marz

Wondered how things are going for you .... someone posted on this thread and I had an alert - so had me reading again :-) Hope things are improving for you .... did you ever manage to have the T3 tested - good levels are needed for the kidneys I have read.

Not what you're looking for?

You may also like...

Thyroid Levels

Hi my doctor says my t4 is good, and the symtoms i have could be because i have too much, levo, i...
katbar profile image

Thyroid levels postpartum

Hi everyone, this is my first time posting, although I'm an avid reader of all posts on a daily...
barbaradoll profile image

Thyroid Levels

Hi, I need a little help with my thyroid results. I wanted testing, I just cannot lose weight and...
Galadriel1 profile image

Thyroid levels??

I've been unwell since jean this year, sore throat cough, tiredness and very croaky voice. At first...
Donz profile image

Thyroid levels

Just for my own comparison purposes...What would be considered "normal" test results for Tsh,T4,T3...
hypoplexed profile image

Moderation team

See all
SlowDragon profile image
SlowDragonAdministrator
PurpleNails profile image
PurpleNailsAdministrator
Buddy195 profile image
Buddy195Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.