Thyroid UK

Thyroid levels

I was diagnosed with under active thyroid back in June 2017 as TSH levels were 24.4 and I have a B12 deficiency so I have to have a B12 injections every 3 months. I am now starting to feel better which is great as I have suffered for the last 7years . I decided to have a look at my medical history and I was horrified to see that back in 2010 I had my thyroid levels tested (as I was symptomatic )over a 4 month period and my TSH levels were 68 then 74 all stated under active thyroid but never treated . I am now in a dispute with the surgery as to why I was never treated surly if levels were that high I should have been treated?

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You don't give any lab ranges for the results. Do you know what they are and were then?

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Between 0.2-5.5 when I got the results they only show the TSH levels not the T4

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Has the laboratory range always been the same or has it changed?

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The same

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Have you got thyroid antibodies and when where they tested? When did the B12 treatment begin?

Have you been tested for intrinsic factor antibodies?

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Yes I have thyroid antibodies although they were only tested in June 2017 not at the previous tests in 2010

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What about intrinsic factor antibodies? Were they tested?

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The B12 treatment started in June 2017 I don’t think I was tested for that

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Sorry, I didn't see your reply, if you want someone to see a reply then you need to reply using the green reply button on the person's post.

If your B12 was low you should probably have been tested to rule out intrinsic factor but to find out what tests would be best, post your B12 and folate blood test results along with lab ranges on the Pernicious Anaemia HealthUnlocked forum. They can give you the best advice.

You TSH may have lowered as a result of Hashimotos antibodies activity or it might be due to starting B12 supplementation.

Currently, in the UK if the TSH is over 10.0 then that is the trigger to start a patient on levothyroxine replacement. (in other countries the trigger is much lower). You can find the information on the NICE website.

cks.nice.org.uk/hypothyroidism

I don't know when the guidance was first issued.

If you have recent blood test results then post them here along with lab ranges and people will give good suggestions.

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Given your doctors' lack of concern about your health I think you have good grounds to visit and tell them you want full vitamin and mineral testing and full blood tests to check your health. It's very likely you now have deficiencies due to your long standing hypothyroidism.

It can have consequences to be vitamin deficient so make sure they thoroughly check your health. For example, low folate can cause drusen in people's eyes (although that's an optical check). As you know, B12 deficiency can raise some risks too. Vitamin D deficiency can cause many symptoms too. So rather than worry about what should have been done, maybe make sure they put things right now??

Once you've got the correct treatment you might want to consider making a complaint?

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Thank you very much for your reply

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