Hi all, I am trying to work out specifically whether you think it is more of an adrenal problem.
I get up, whatever time of day which varies because I have worked way round clock, slept day, got up night and then struggled to get back to getting up in morning and so it goes on.
So if I say that if I wake up in the morning, still tired, of course, but am ok pottering around - ish or sitting and getting up and down doing little chores (not a lot as can't) - but then dramatically, I struggle to last say 8 hours a day (even doing as much as can, but little really) - whereby I would be unsteady, almost to point of worrying going to fall over, if say walking from one room to next - or to stand to boil a kettle even -
this seems the pattern.
I know I am asking here and OUGHT to have the saliva tests maybe - for adrenal / cortisol - but funding is always an issue and GPs let me down so badly, I don't frequent at the mo - having a rest from the stress of them not assisting or not knowing etc....or arguing when I suggest things need checking. So it is on my list of save monies up for (difficult) private testing - but because of the pattern, after say 8 hours (more or less) before I get quite debilitated daily - yet whilst very unwell, feel I can jig on the spot for a couple of minutes earlier in the day - but hardly walk after a few hours - is this leaning towards adrenal type symptoms.
The reason I am not saying it is the thyroid aspect - is generally, I know I was very hypo, I tried and couldn't take T4 - the docs wouldn't prescribe NDT nor do they prescribe T3 - they wanted me to go to hospital (some time back) but I figured with some of my scary symptoms it was a mighty gamble on whether T3 would also be rejected by my ever so fussy being... (it's true) ... so I had come off T4 some time back - then I went gluten free and tried to cut junk out of diet - strangely I felt lighter - still unsteady at times, tired but a degree better - in a hard to explain type of way.
I sent off for Genova testing - urine Iodine and T4 T3 test and really weird it came back as deficient or somewhat in iodine - but the T4 and T3 were in range - not high, but way better than had been when GP tested - several times. I am overdue more tests - money again or anti docs too (sorry them that don't like this, but I did see several and none any good) - so taking into consideration that private test - was it a fluke~? Anyway - it's the last all day bit I am thinking logically -
I cant see it being lack of T4 / T3 causing the lasting a few hours or say 8 hours a day as reasonable (ok not normal stamina) but the debilitated after 8 hours and beyond ready for bed. It seems to be a pattern whether day or night that the little energy I have daily plummets defo by 8 hours - so I cant say get to a small shop or walk up the road or struggle round house - it is like saying I get 8 hours to just about function (at lesser than my old self) then humph... no energy.~
NOW I KNOW.... that I was very hypo and I have to say I could stay awake 24 hours on occasion... albeit tired... but I was normally awake for standard length time, consistently level of heavy thyroid type symptoms -
BUT this is different, this is like I COULD appear to have some energy when first get up and for a few hours every day which plummets to debilitating.
Hard for you peeps to understand - but I could search for hours - so I am thinking I have read something before - but if any of you have actually worked out if this is adrenal it would help me try to plan my next moves in trying to help self. (Don't be alarmed LOL - I tried Docs methods for long enough and they really know nothing or avoid helping)!
Please don't just reply to get tested - I am aware, but I am very poor.
It is the recognisable pattern of debilitation daily, yet get up better the next day, after sleep I am raising - does anyone know, by their own natural docs or NHS docs if good ones - what precisely this could be? Being I wasn't like this, when seriously hypo and I am not sure until next tests if TSH / T4 / T3 antibodies is up down or what, but symptoms changed - I was very heavy when seriously hypo, couldn't lift a leg - now I could do an intermittent dance... then crash LOL.