What to do now ?: I posted results of a Blue... - Thyroid UK

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What to do now ?

Pinkpeony profile image
10 Replies

I posted results of a Blue Horizon blood test couple of week's ago and it was deemed to be satisfactory , although one person thought t3 could be a bit higher.

I have also had tests for Endo , who I see on Tuesday , and am slightly confused .

On the 22/7

T3. 5.5 ( 3.5 - 6.5 )

T4. 17 ( 9 - 23 )

TSH. 0.12 ( 0.35 - 5.5 )

This is when I was struggling to take t3. and taking minimal amounts.

On the 15/9

T3. 4. 3

T4 13

TSH 0.1. Ranges as above.

This is on the 20mcg a day I was prescribed.

I am feeling quite unwell , lightheaded with eyes weird , tremors in my hands and sometimes legs.

T h e worst of all which has got me scared , I s that all night long my heart is in overdrive. It's not the massive palpitations like when I was HYPER, it's putter putter putter. My pulse is measuring 125 150 in the morning, but later in the day it drops.

I am very anxious now and don't know what to do.

I sincerely wish I had never started T3 ,and accepted the increase in Levo Endo wanted to give me.

I am taking the 100 Levo I was on when he gave me 20 mcg t3 .

I don't know whether to take the t3 today ?

I look forward to your help

Pp

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Pinkpeony
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10 Replies
Tayhung profile image
Tayhung

Hi. I am no expert and three months in to T3. I would have thought you would need to have lowered your levo. Though all your results look less than optimal. Also do you split your T3 into two doses? I take 10 mg in the morning and the rest in the early evening 5:30. Check in with clutter. Always good advice

Pinkpeony profile image
Pinkpeony in reply toTayhung

Muriel thank you for your reply.

Yes I do split them , 10 a.m. and 10 p.m.

If my Levo is reduced would that reduce T3 further.

I would like an idea because I am seeing Endo on Tuesday and I think he doesn't know much more than me.

Cheers Pp

Clutter profile image
Clutter in reply toPinkpeony

PP, You aren't overmedicated, Sept. FT4 and FT3 are low.

Pulse rate increases an hour or two after a dose as it peaks in your serum. It usually subsides to normal within an hour to 90 minutes.

Try taking your second T3 dose 4-6 hours earlier and it won't then be peaking in your serum when you are sleeping.

Pinkpeony profile image
Pinkpeony in reply toClutter

Thanks Clutter.

Pp

galathea profile image
galathea

That sounds like adrenals are maybe struggling a little. Best way to find out is either a saliva test, or do the temperature chart as outlined on drrind.com. I posted about it a few months aho if you want to check it out..... Will add the link later.

xx g

Here is the link.....healthunlocked.com/thyroidu...

Pinkpeony profile image
Pinkpeony in reply togalathea

Thanks galathea.

I think adrenal were tested a couple of years ago but assuming things were ok at the time.

Will take a look at that chart.

X Pp

shaws profile image
shawsAdministrator

I only get better the more I reduced T4 and increased the T3. I take T3 once daily so that it saturates my receptor cells and that one dose can last between one to three days.

I also had permanent palps on T4 too particularly during the night. This is some info I was given by an expert on the thyroid gland:-

If thyroxine isn't being properly processed and taken up by our tissues, the unused thyroxine builds up and causes toxicity - heart problems and palps almost invariably.

Pinkpeony profile image
Pinkpeony in reply toshaws

Thanks shaws that makes a lot of sense to me.

How much t3 are you on . Do you self medicate?

I can't see Endo giving me more.

Pp

shaws profile image
shawsAdministrator in reply toPinkpeony

My doctor knows I am on T3 only and he prescribes. I had an unfortunate experience with UK T3 last year so have been reluctant so far to give it another try, and I prefer Unipharma T3 . My dose is approx 32mcg as I take 1 1/4 tablet.

Pinkpeony profile image
Pinkpeony

I am reluctant to self medicate as a lot of people seem to have supply problems , and I I have a foot " over the hill " so to speak which makes me nervous. Lol

Will have to see what Endo says on Tuesday.

Thanks shaws .

Pp

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