NDT: Has anyone in the Edinburgh area had support... - Thyroid UK

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NDT

Ajc20790 profile image
10 Replies

Has anyone in the Edinburgh area had support from their GP re using NDT. I have Hashimoto's and feel rubbish and might consider this but worried about lack of medical support.

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Ajc20790
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Clutter profile image
Clutter

Ajc20790, you could ask your GP to monitor you taking NDT. If refused, you can order private labs and monitor yourself. Members are happy to interpret results if you post them with the lab ranges.

Ajc20790 profile image
Ajc20790 in reply toClutter

Thank you. I'm doing loads or research just now on this. have an appointment with GP next week will get bloods etc done, suss her out then make the decision. Currently on 150mcg of Levothyroxine feel rubbish. It's good to know there is support available. Thanks.

Clutter profile image
Clutter in reply toAjc20790

Ajc, 150mcg Levothyroxine is bioactively equivalent to 2 grains NDT (120mg). Most people switching from T4 seem to take more NDT than the bioactive equivalent.

Ajc20790 profile image
Ajc20790 in reply toClutter

Thanks that is helpful.

pet-lamb profile image
pet-lamb in reply toAjc20790

AJC 20790I had a similar conversion with one of my doctors recently where they seemed to be hesitant about confirming that they would treat me if I became ill through self medicating on ndt.in the end the doctor indicated,that they would help me.they wouldn't/couldn't prescribed ndt.or monitor me while on it.but they did have a duty of care to me as all the medical profession has to their patients.

Ajc20790 profile image
Ajc20790 in reply topet-lamb

that is reassuring! Thank you.

Orpheline1 profile image
Orpheline1

Can you explain why certain people are switching to ndt instead of levothyroxine? Are GPs unfamiliar or against such a switch? At the moment I get my meds on the NHS because my Hashimotos is considered as though I have diabetes and is free on the NHS.

Ajc20790 profile image
Ajc20790

I have been on thyroxine a number of years and still feel rubbish with a load of symptoms. Currently looking in to it to find out more about it. People on it seem to feel much better but there is a huge amount to consider. Grom what I have managed to find out it's difficult to find a GP who can help with this although I've not tried yet. The NHS only use Levothyroxine as a means of replacement an they stick to it pretty rigidly. The NDT was used successfully for years prior to the manufacture of Synthetic Levothyroxine. I am finding through loads of research that T4 only replacement might be the cause of my daily symptoms.

Schmusse-katze profile image
Schmusse-katze

I was on Levothyroxine for a year and ended up walking with crutches and got so depressed, that they put me on anti depressants. I finally go so tired of all the side affects that I switched to a natural thyroid support. With in 4 weeks I was off the anti depressants and of the crutches as well. This worked well for a year. Then I started getting tired again and gaining weight. I found out that the supplement did not have any T4 or T3. After some research I found a side here in the US where I can get NDT with out Rx. Now I am waiting for my blood test. Also trying to decide weather or not to go to T3. But I know, I will never go back to Levothyroxine!

Ajc20790 profile image
Ajc20790 in reply toSchmusse-katze

Thank you that is helpful.

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