I hope someone may be able to give me some new information as the specialist has not sorted it out in over 5yrs.
My daughter (27), has uncontrolled hypothyroidism, yep, over 5 yrs now it has been out of control. Her last bloods were TSH 244, T4 7.9 and T3 1.6. That is the best TSH we have seen in years but obviously that is very much out of control. She takes 1,000 mcg levo per day (at night) and a small dose of T3. Her specialist only ever does blood tests and once in the last 5 yrs she spent most of the day in hospital having lots and lots of bloods taken at regular intervals.
Now, I have read about malabsorption of levo, it's rare but it does happen and in those cases the patient is given IV thyroxine either into a vein or into the muscle. Now, has this or similar to this happened to anyone else here? If so, have they managed to get you under control? What tests did they do to help sort out your problem? Her organs are starting to fail, she fears she is going to die soon and as a mother it is tearing me apart to hear such things and to see her body giving up on her. She has put on between 15 and 20 stone in weight in the last 5 yrs and that is seriously adding to her deterioration. If you can help in any way possible please let me know.