Hi there I have been hypothyroid for 18 years. Up and down all the time but the last two years have been particularly bad. Dry sling, exhausted, cold, acing, 2 stone heavier than normal, I could go on and on! I've never had my T3 checked despite demanding that my endocrinologist tested me, he said it was a waste of time as I would be in intensive care if I had low T3 said he wouldn't prescribe ndt as he said it was impossible to monitor he said levothyroxine would produce enough T4 to be transferred to T3 even tough my levels are all over the place. He mentioned my pituaritory glad hadn't produced any hormone something that has never been spoken about to me before. He sent me for blood tests and said would test everything. When I went yesterday he still hasn't requested T3!!!!
I'm giving up on him so does anyone know any good doctors in Berkshire or even Essex as my mum lives there so I could travel there. Failing that I'm going to self medicate but the only place I can find ndt online is out of stock.
Thanks in advance.
Written by
leanneclaire
To view profiles and participate in discussions please or .
Members are more likely to respond with sources for NDT if you post recent thyroid results with the lab ref ranges (figures in brackets after results) and say how much Levothyroxine you are taking.
High dose Levothyroxine usually suppresses pituitary output of TSH, and for some people this can occur on doses of 75mcg. Low/suppressed TSH is a response to Levothyroxine, not pituitary dysfunction.
LeanneClaire, TSH 8.40 is far too high for someone on Levothyroxine. Your FT4 is low and your FT3 is certain to be low. The goal of Levothyroxine is to restore the patient to euthyroid status. For most people this means TSH just above or below 1.0 with FT4 in the upper quadrant of range. You really need a dose increase.
If you self medicate NDT you'll need to transition gradually. Dosing usually starts at half a grain with half grain increases every two weeks, titrating Levothyroxine as you go to avoid hypo symptoms.
With your results I'd add some Levothyroxine or NDT to your existing dose rather than switching. If you switch to NDT you will need to order private thyroid tests to check your FT3 which should remain within range.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Becoming resistant to NDT dosage?
NDT to T3
Getting GP to prescribe T3 
liothyronine or NDT?
