This is my first time on a forum so forgive me if I struggle to reply/communicate quickly back.
My 10 year old has been suffering from awful fatigue, nausea after eating and drinking anything, joint pain, painful sinuses, headaches, tons of mouth ulcers, and recurring kidney infections. Doctors keep implying she is 'stressed', which is insulting. We have BUPA but have had a bad experience with one paediatrician who put it down to 'a bit of knee ache and tummy ache'!!!!
She has recently had an endoscopy and colonoscopy and we are STILL waiting fro the results. The 'nearest' any one can get, it CFS. I cannot believe that the body suffers so much pain without there being a specific cause. I have been in touch with a lady who was diagnosed with CFS over 20 years ago and was actually wheelchair bound by it. However, she was fortunate enough to see Dr Gordon Skinner (who sadly has now passed away) and he diagnosed her with a thyroid condition and has since recovered very well and is out of her wheelchair!
I have spent over a week trying to find an endocrinologist that will do more detailed tests than just TSH. This search has been made extremely difficult as most will not see children! So, I am in desperate search for a consultant-private preferrably for speed- that will look at these deeper thyroid concerns but for children. I am prepared to travel anywhere but live in the West Midlands. Can anyone help? I clearly seem to be looking for another 'Dr Skinner'. My child's mental state is very poor due to the lack of medical support she is receiving and it will only get worse if I cannot find her someone to help her.
Thank you, all. x