I have just joined your health group and wonder if anyone has any thoughts concerning my ongoing thyroid related health problems.... This might be a long post, apologies.
I have just been to see a female gynaecologist for investigations connected with some prolapse issues of bladder/bowel/uterus - and for the first time ever on the NHS I felt I was listened to by someone who wanted to join up some dots and get an overall picture. She said that "something else is going on here" and asked me questions to do with my thyroid issues. She thinks that my prolapses may well be to do with an underactive thyroid causing constipation etc. I told her about the more accurate tests which are available privately and she said that if I organised them, she would receive the results. This seems like a breakthrough for me - but also a chance to educate a medic who may spread the word about the ridiculous state of affairs with thyroid non/under treatment.
Brief history - I am a 64 year old woman who started with thyroid symptoms - both hyper and hypo over 10 years ago, even though blood tests with my GP were always within the 'normal' range - although I had thyroid anti-bodies. A Urine test with a private doctor eventually showed that I was hypothyroid. I started taking 1 grain of Armour Thyroid, still didn't feel great but couldn't increase the dose because of that awful inner shaking feeling. After taking that for a couple of years blood tests with GP showed I was toxic with T3. I reluctantly started taking Levothyroxine only. So I have been diagnosed with Hashimoto's but can only cope with taking 50 mcg of Levothyroxine, prescribed by my GP, any more makes me have hyper symptoms - but meanwhile I have all the hypo symptoms continuing of extreme fatigue, constipation, weight gain, insomnia, brain fog, aching joints, 'fibromyalgia', no libido, heavy painful legs with that mucin jelly substance under the skin and around my joints (which no medic wants to acknowedge, start of serious myxoedema?) but can flip into over-drive and also I am so irritable/angry/close to tears/short tempered/anxious with a high startle response. My GP wants to give me anti-depressants, which I will not take.
Which tests from Genova Diagnostics would you recommend I order - the full Thyroid profile plus the 24 hour urine test - and some adrenal function tests? I want to get a complete picture about what is going on for me at a cellular level as well as what is circulating in the blood. Have any of you experienced pelvic issues with an under-treated thyroid? Also I have been researching pelvic venous congestion, which sounds very much like my symptoms too.
I would appreciate any thoughts before I see the gynaecologist next. I want to begin to feel well again - I feel that after being a very young-looking woman who was strong and healthy before 50, it has taken this long for any symptoms to be taken seriously.
Thank you, Lesley