Dear all, I was taking 75T4 and 20T3 and of course my TSH was surpressed @ 0.01. so my endo increased my T3 to 30 and removed all of my T4. I told him this would make me ill but he insisted. So I did as he asked and 6 weeks later I felt really unwell, couldnt get up the stairs without being breathless, bloated face and body etc etc. So I went to see my GP to demand the T4 back and she gave it to me but wrote to let my endo know. This was about 6 weeks ago. I saw my endo last week who firstly told me off for seeing a GP and not "living with it" until I next saw him. He then said that he will be reducing my meds until he increases my TSH and if I dont stick to his dose he will remove the T3 all together. I asked how he intended to increase my TSH without making me unwell. He told me that I would have to compromise on some of my symptoms. So he has dropped me to 20T3 and 75T4 for 6 weeks and if my TSH doesn't come up he will drop me to 50T4 and 20T3( a dose i have been on before and wasn't well on) There is no hope is there really? Compromise on my symptoms? On 75T4 and 30T3 and my results were T4 9.6 (9 -21) and T3 4.2 (3.6 - 6.5) and he says I am "over replaced" I asked how I could ne over replaced with my T3 and T4 levels as they are and that I have absololutely no signs of being hyper...he said that my TSH says so and that is all that he cares about.
So I have bought some Tiromel and I guess I will start with that if I begin to feel unwell again. Crazy thing is that he says that my TSH shows that my body is stressed even though I feel fine on this dose.....yet when I lower the dose as he has instructed before my body feels very stressed and unwell. But apparently that is not the case???
Why does he not care about me rather than an outdated blood test?