T3t4: Why is it that I was on 175mcg of t4 And... - Thyroid UK

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kjc1tisdell profile image
12 Replies

Why is it that I was on 175mcg of t4

And if t3 is equivalent to 60 t4 am I under replaced if I am on 75t4 and 20t3. This makes 135mcg. My temp are lower now than ever before.

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kjc1tisdell profile image
kjc1tisdell
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12 Replies

Hello kjc,

Your working out is correct as 20mcg T3 =60mcg T4.

Low temperature can indicate low thyroid hormone.

Flower

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Disclaimer: I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

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Correct, you are under - replaced as that isn't an equivalent dosage.

kjc1tisdell profile image
kjc1tisdell

I do already know this. However after a few years of dosing myself and being sought of ok. I thought I would (maybe a mistake) do it along side GPS help. So I have to wait the long wait of another 8weeks before next bloods. Even though I know what my correct dose is. Frustrated as I've got to endure muscle weakness and constipation. Lol started on iron ref clutter a lot. The calchi chews are making the weakness worse and I keep passing out.

also the 175 I was on was never disputed by GPS. But a bio chemist rang gp and said this lady needs t3. This was the only reason I got the t3on prescription. Unfortunately I am allergic to the nhs t3.lol.

still having to buy my own but better quality.

I can get to around 1pm then I canbarely walk.

I'm very worried that they won't put me up as the tsh is 1.1.

However my resting heart rat is only 50. And I can't get a temp over 36.1 and my armpit temperature is only 34.

I am on all vitamins thanks to clutter after she read my blood results.

any advice . When I was self medicating I was on 100t4 and 43.75 of t3.

humanbean profile image
humanbean

If you are buying your own T3, surely you don't need your doctor's permission to raise your T3 dose? You are under-replaced so why not increase T3?

kjc1tisdell profile image
kjc1tisdell in reply tohumanbean

I don't know which one to increase.

t4 or t3

I was on 100t4 and 43.75 t3. But this was when I was still having periods so eostrogen and progesten levels would have come into this. However it has been exactly to the week of my last period a full year. I'm a hot sticky mess. Or am I barking up the wrong tree here.

So don't know do i dose toget me moving.

Should I still be able to run up and down the stairs still. My gp say its eostrogen that makes us run and jump because I asked her what makes us move and exercise.

did she lie to me just to give me eostrogen. Which Iddidn't take.

so confused.

thanks for responding to message I have got scared for some reason. I had agreed with clutter to post my next results for her to look at.

regards kate

humanbean profile image
humanbean in reply tokjc1tisdell

I don't blame you for not taking estrogen just on the doctor's say so. I wouldn't take it either unless I knew I had a deficiency. So did she test your estrogen and progesterone? Or did she prescribe it on the basis of a hunch or a whim?

I would have said T3 was more important for giving you the energy to run and jump. The fact that a biochemist actually phoned up your GP and said that you need T3 makes me think you should try adding 1/2 tablet of T3 to see how you get on. Since you are already under-medicated then I wouldn't reduce your T4. If your tablets are 20mcg then 1/2 tablet would be roughly equivalent to 30mcg of T4, which would bring you to the same level in total that you were on before. If your tablets are 25mcg, then 1/2 tablet would give you the equivalent of another 37.5mcg T4.

The only thing you have to be aware of is that adding more T3 might suppress your TSH. Are you prepared to ignore your doctor again?

I don't know what effect calci-chews have and why they might make you pass out, but that in itself suggests something is not right with something. Do you have osteoporosis?

kjc1tisdell profile image
kjc1tisdell in reply tohumanbean

I had graves disease and was diagnosed alongside this with osteoporosis And ankloding spodilisis of spine. This doest bother me as much as the painful legs and a24hr stiff neck.

I had tumour on pituitary gland. Had radiation and chemotherapy. Ovaries took a beating stopped ovulating and startedthe flushes age 37. At this point in my life I am a chartered physiotherapist. Have worked all over the world and became a teacher. Was full time teacher still when diagnosed with graves disease 7years ago. I was gps first graves . She thought i had parkinsons disease. Can laugh now but she cried wth relief when it wasnt. This gp turned out to be the worst gp on the planet kept me ill on t4. Even when i crawled on all fours into her room.

Met associate of Dr Lowe. Diagnosed with adrenal fatigue.

15 total cortisone for the whole 24 hr saliva test. 2 points away from Addison disease. Put on methylpregnesole twice a day. I was notconverting t4 at this point. The adrenal support helps the adrenal to recover then you should be able to convert the T4. You need cortisone to convert across the liver. Eventually i was on 75gm t3. But i still wasnt well needed tointroduce t4. This is when things go wrong for me. I beleive that any t4 can stop t3 from working.

But i had forgotten to keep taken the cortisone. I don't really like it I sometimes think it makes me puffy and water retention.

So I lost my mentor as this person retired. Then bought Paul Robinson t3 book and found New gp who believes in t3. And she has just tested me for all the vitamins. Everything came back low. So I'm trying to get well with the vitamins.

I was low in vitamin d. I don't know why I needed the calcium. In fact today they tested my parathyroids. My endo consultant was rubbish. For the last year I have nearly been housebound with c.f. and fibromyalgia. Go made me come off adrenal support told me it was going to give diabetics. But i think this is why I am in trouble. Come 1pm my heart rate drops to way below 55 and my oxygen can drop to as low 90. It still got to be adrenals. Even though clutter looked at my last freet4 results and I am conveering. I was never right after having thyroid killed and have not worked since. Whilst on t3 i Sid manage to have a few clients come to my home. But was exhausted afterwards. But i could run up and down stairs. I also sisnr have great temps on all t3. I always thought the low temps was eostrogen dominance blocking thyroid hormone.

anyway I haven't had a period for a year and sweating because I'm under active and sweating through menopause.

even though I have low cortisol I too have the feeling of being well before bed and then can't sleep I wish I could so housework . I have problems with my feet and ankles like really chronic ligament pain or arthritis. This is my most horror as walking was the last thing to go for me. I have four dogs all greyhounds. I have three teenage boys. My husband changed his job and works mainly from home. I have a lot to be thankful for and I am and I love my family.

But when I wake up every morning in pain I wished I hadn't woke up. This is not depression this is not being able to fight any more.

regards hormones or h r t they want me on hormones because I'm not yet 50.

I read a previous post of yours about your high cortisone I have low cortisone yet we are leading the same life. I have been told by hospital that I need a Short Synacthen test this is also about the adrenals and I certainly have the bad back of a ddisons. This makes me mad as the nhs don't believe in adrenal fatigue and now they want me to be tested. This I think is where there a mix up with you. You may have high cortisol levels but your adrenals will still be exhausted and it take a a year to get them right. I read somewhere something that can bring cortisol levels down. Ltheanine is one . But is adrenal support I think that you need. I will find out some info for you if I can.

anyhow sorry for long story. Will think of you walking dogs while I try to walk mine.

from one bad housewife to another

adieu

regards Kate.

🐕

kjc1tisdell profile image
kjc1tisdell in reply tokjc1tisdell

Ps are youwell now as it was an old post that I was looking at. So if I've caused offence at an old post where you were not great I sppologise.

Are you well now and a great housewife now.

If you are well now I would be very happy then you could help me thanks.

humanbean profile image
humanbean in reply tokjc1tisdell

I have got quite a lot better during 2015. I'm taking T3 on its own, and I've finally managed to get my iron and ferritin up to a reasonable level. I haven't tested my cortisol in quite a while so I don't know how that is now, but I had a period of extreme stress during the year that I managed to recover from fairly recently, but it threw my whole life upside down for a while. This suggests that my adrenal function is still not right. I do still have non-thyroidal illness which I'll be stuck with for life, and it gives me a lot of pain. This has been one of the causes of my stress this year.

I'm still a dreadful housewife, and don't have the energy to do much about it. Fear of making my pain worse adds to the problem.

I still have a dog, but just the one. Her life has been quite dull in recent years but she's old so didn't have the energy herself to keep on doing long walks. During her youth I had sufficient energy to give her interesting walks most of the time.

Regarding your health problems, it looks so complicated, that I'm not sure that I can say anything helpful.

I'm surprised that nobody told you why you needed the calcium. You must find out. The low vitamin D may have been responsible if you had low calcium levels. Alternatively you might have a problem with your parathyroid glands - but that is something I know absolutely zero about.

As far as I understand it, if your low calcium was caused by vitamin D deficiency which was then properly and adequately treated, then your calcium would have risen as your vitamin D rose, and calcium supplements wouldn't have been necessary. Anyone taking calcium supplements needs to take vitamin K2 supplements to try and persuade the calcium to be deposited in your bones rather than in your arteries.

yourhormones.info/endocrine...

But I really am hypothesizing on the basis of too little information.

I'm not clear... Are you in the UK? If you are then you might do well to see Dr Barry Durrant-Peatfield. He is a retired doctor who works as a nutritionist and he is very interested in adrenal function.

I've never heard that adrenal supplements will lead to a greater risk of diabetes. I'd be interested in reading any links you have on that.

The problem with your feet and ankles might be plantar fasciitis. It's a fairly common hypo symptom. I got it, but it was a late onset symptom for me. It went fairly quickly once I got onto T3.

If you've had a tumour on your pituitary gland followed by radiation and chemptherapy, has anyone ever given you full testing on all the hormones that the pituitary should be producing? It should have been done as a matter of course. Your pituitary may be effectively useless, and any testing done on hormones that it should produce (which includes TSH) can't be relied upon.

en.wikipedia.org/wiki/Pitui...

I do hope you find some form of useful help.

kjc1tisdell profile image
kjc1tisdell in reply tohumanbean

Thankyou for you support. I have been severely let down by the nos regarding my illnesses.AndI had had to fight so hardfor tests. Anyhow I know Dr peatfield one of his associates has been helping me the last few years ..my problem was going back to the GPS and getting confused by them. Menopause confuses things as well. I would just like to get up in the morning. The one thing I haven't lost though is my sense of humour. And I lucky that my husband is great. Been married thirty years. But I do dread the Christmas thing when I have family to stay. I just get tipsy and to he'll with it. I know I can be better something just needs to be tweaked. The calcium and bit d thing has all only happened in that week or so. I'm just glad that I am not on my own and that other people are and have been where we are.

I will let you know how I get on.

regards kate

kjc1tisdell profile image
kjc1tisdell in reply tokjc1tisdell

Yes it is plantar facilitis as a physio it was frustratedas I knew it was thyroid.

kate

langdocienne profile image
langdocienne

HI KJc, you know I still take my 125mcg daily of T4, self-medicate with T3 as well, 50mcg in 4 doses, and feel great. Just go with what your body tells you, and not numbers.

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