Graves disease hyperthyroidism advice

I am sorry you are in a predicament again but someone who has had Graves will respond.

I have hypothyroidism so cannot give advice. I do know that RAI or surgery is the last choice.

I am also sorry you have not much support at home as your husband is working away and you've to look after young children which is very tiring particularly when you're unwell.

Firstly i trust you do not smoke

2ndly avoid RAI like the plague

surgury is better but be very sure you have a cast iron guarantee they will treat you with NDT afterwards based on any hypothyroid symptoms not on blood tests

because after Graves Disease your body becomes so sensitised to such high levels of thyroid hormone you will not be able to cope on so called "normal "levels

(Very old swedish research which they have forgotten )

My husband has been through what you are suffering and after surgury suffered 6 years of hell sliding into myxodeama madness because they failed to remember thae swedish research

Sorry to hear of your troubles. My wife was diagnosed with graves in her 40's and her doc in the states gave her no choice in the matter about RAI or surgery. She was given RAI and has been on levothyroxine since. She could have had her thyroid reduce by surgery leaving some thyroid. Levo has its side effects from the synthetic chemicals. My wife takes 40mcg of beta blockers as well which have helped her migraines. As for foods have you any gastro issues? If you do, have you thought about a Gluten Free Diet?

reallyfedup123 has a good point and has more knowledge than I. Smoking has its issues as the heavy metals in cigarettes can also affect the thyroid.

Wish you well and hope you get to the root of the problem quickly.

Hi

I have Graves I take L Carnitine, Selenium, Vit D3 Vit B Bugleweed and when I am feeling stressed Lemonbalm.

The L Carnitine will help you a lot as will the bugleweed. Also there are vegetables that can make things worse avoid fish. A lot of people have amazing results with the paleo diet. I haven't tried that yet as my bloods are returning to normal.

RAI is not an option for me and neither is TT however for some people it has helped.

Thyroid disease is a bit like shoes not everyone is the same size.

You could ask to try PTU although many Endo's don't like it. What I would say to you is this look at the risks with both RAI and TT because no-one will tell you according to the doctors you will be fine. Graves is an autoimmune disease and if it does not have the thyroid to attack it can attack elsewhere. Please before you make any choices do lots of research and ask lots of questions.

Good luck

I have Graves Disease the second time in 22 years. This time around I decided to support my body with Natural Therapies and I feel a lot better. Turmeric for inflammation is a must. Magnesium and Hawthorne for the heart, Selenium is necessary in both hypo and hyper Thyroid conditions, and also helps with swelling around eyes. A herbal mix of Bugleweed/Motherwort/Lemonbalm a few times a day, as well as Vitamin D. Also, get a Hair Mineral Analysis done to find our your mineral levels. Graves gobbles up Calcium and Copper. That did not cure me, however, has made my life a lot more comfortable. I will now start on a low dose of Neo-Mercazole. Another thing is now that I really need to get to the bottom of it. I want to know why it raised its ugly head again after 22 years free of it.

What stresses me out so much that my system cannot handle it. I hope this helps.

Wishing you well on your journey!

I have the same thing u do for 22 years. I have never stopped my meds. I dont think thats good. Do u have high blood pressure?

Sorry it took so long to respond time difference. I live in u.s.a. ur levels keep going up because ur doctor should keep u on ur meds all the time. My endo told me the thyroid is the engine to ur body. Some women never get over what we have.

HI, after many years of being on carbimazole and periodically beta blockers and many many ailments related to being Hyper, my endo really encouraged me to go for RAI. I had turned the opportunity down a few times prior to this but I had had a few months of then coming out in a really itchy rash which is thyroid related, my feet and particulary lower legs were always itchy. The only thing that was putting me off going for RAI was that I would then become Hypo, which I did. However, the benefits definitely outweigh the downs. I have children too but you are given a certain time, I think its a few days not to be really close. I stayed in the same house, covered the chair with a throw and used a separate toilet / shower and everything was wiped down after I used it. I would recommend it as better that being Hyper, I was at the end of my tether.