This is my first post and like many I am looking for advice. I was diagnosed with hyperthyroidism in January 2014 & went on to be diagnosed with graves disease a couple of months later on Good Friday when I first saw my endo. Since then I have been on various doses of neomercazole & beta blockers. I have been on 20mg neomercazole for the last 5 months & had come off the beta blockers & all was well until about 3 weeks ago when I fell ill & ended up on antibiotics & steroids. I noticed then that my heart rate was creeping up again & I actually took a beta blocker on 3 or 4 days where the rate was up at 110+. I had a check up with my endo today & it turns out I'm hyper again. I hadn't put 2&2 together as I had put the heart rate down to the medicines as both mentioned increased heart rate as a side effect. I was really surprised to hear my levels were out of whack again & of course my endo started talking about RAI or surgery. For now he has increased the neomercazole to 30mg (15 twice a day) & I'm back on 80mg of beta blockers. I have to have bloods done every 6 weeks & go back to the endo in September. He made it clear that if my levels don't stabilize within 2 years they will not stabilize with medication & I will have no choice but to have either RAI or surgery. I know both have risks & I'm really not keen on RAI as I have young children (one with autism & the other suffers with anxiety) & I would do all the running around after them as my husband works away.
I guess I'm looking for input from anyone who has been in a similar situation.
Also does anyone have any dietary recommendations, can what we eat/drink help? I have seen lots of books about food & thyroid disease but don't know if any are good/bad/indifferent so if anyone has had any success and can recommend anything.
Thanks for listening.