Hi all you knowledgeable people. Can you advise me on my blood results. My blood results have gone from tsh 0.05, t4 32.2, t3 12.3 in Oct 2013, now down at tsh 1.17 , t4 16.8, t3 4.0 March 2015
and I was yesterday discharged from hospital monitoring with the following advice from the endo nurse. You have been off 50mg Propylthiouracil for 6 months.
Your blood test shows you at a good level now and normal so we will discharge you.
Go for routine blood test every 3 months for 1 yr, then 6 monthly in year 2. Annual thereafter. However, as you have Graves Disease when your GP refers you back to us, you will have to see the Consultant to discuss the radio active iodine treatment. You can't go on tablets as before.
I asked if it was normal for me to still feel irritated and could argue with my own shadow on occasions, that my arms and legs were permanently cold and I never seem to be able to control my body temperature. Still no libido, hair still falling out big time. My TSH is now at it's lowest level since first diagnosed, my t4 is now at its highest since I was first diagnosed, and my t3 has fluctuated between 3.4 and 4.0 since first diagnosed. So am I in danger of going overactive again?
I was told everything is normal with your blood so I suggest you go and ask your doctor to look for some other reasons your hair is falling out etc and maybe you need an anti-depressant.
I also asked if I would get a full blood result from my GP with counts on tsh, t4 and t3, the reply was a sharp No, it's too costly and you only need your general tsh, if anything is wrong that will tell your GP.
I keep reading up on all the tsh, t4 and t3 and rt3 and end up confusing myself.
SO to all you I ask am I normal? Well obviously not, but that aside, do I have a an acceptable blood result and do I just have to hope that in time I will be well? Is this as good as it gets with Graves disease?.
I am so much better than I was in that the debilitating and really scarey. 'brain fog' has finally lifted and so no longer crashing my car, losing mobile phone, keys, leaving bank cards in machines, forgetting to pay bills etc. What a nightmare that was. Then the inability to get up/down stairs, open jars, milk and packets. I slept forever and my anxiety over everything was ridiculous. My skin felt as though it came from an alien and I felt like I wanted to scratch it from my bones. My total empathy and sympathy to all those who may read this and are going through it just now. Just believe you are not 'crazy'.
I am seeing a homeopathist who has helped speed my recovery enormously over the last 6 months and I take lots of vit and min supplements