Im sorry i havent been active on here for quite a while now...No excuses either...i seem to have been living in a rather sullen world where i cannot be arsed to do anything except try to survive.
Im also sorry if this is a very long post ive a lot to catch up on.
Before i left here i was on t3 only, returning to work as a midwife, after 12 months sick leave, and managed 18 months. During that 18 months my health declined being totally exhausted, sore joints and muscles, very poor memory and cognitive functioning etc with blood results that were all, including FT3, way below range. Im not sure how i was actually alive and able to function at any level.
Then one day at work, last September, i couldnt remember how to care for the woman in labour i was looking after. Feeling exhausted, confused,emotional and vulnerable i went off sick again and remain off sick now. The occy health consultant where i work demanded i find medical input as i was self medicating t3 under Dr P at the time...My heart sank...for that is what i had spent the last 6 years doing...skipping through GPs and useless endos'. I eventually found a CF clinic in nuneaton where i was referred on to a fantastic professor of thyroid health. This was the first clinic i have ever walked out of with a smile on my face! An NHS doctor who has undertaken research into adding t3 to t4, who understands the controversies in the diagnosis and management of this god awful disease...who understands that even a minor shift in the range of any individual can cause problems...someone who didnt freak out at me self medicating t3...he understood why and is prepared to listen...yes listen.
His plan was to re start thyroxine alongside my t3 and to try and balance the 2 drugs. Well im now on 175mcgs levo and 15mcg of t3, my bloods being at 'optimal' levels...ha! The NHS t3 is very much stronger than cytomel which was evident from the first pill i took! I am still on the usual suspect supplements too. Well despite all that hormone i donnot feel much better...i am still tired from morning to night, have very little stamina, am cold and stiff and pretty miserable ...tho i have found depression has lifted alot since starting the levo. I have had one week of feeling better overall then a sharp decline . I find it hard to tolerate more than 15mcg t3 as I also have palpitations and a profound tachycardia on exertion...by exertion i mean walking up a staircase or mild slope. I tried a gentle swim and found i lost all feeling in my legs , felt like i was about to pass out and a serious case of the jitters which was resolved by sipping lucozade. The second attempt i swam 2 widths before i needed to leave the water. So i'm to take Beta blockers now, to stop my heart lapping up all the hormone and to push it to other places of my body that demand it...im entirely not sure how this will go? Ive also to start melatonin to encourage a better quality of sleep...he does hanker on about sleep. I actually sleep on average for 10-11 hours and still want to stay in bed all day...so maybe it is quality not quantity. The next stage is adrenal tests, diabetes and a thyroid hormone absorption test...cant wait!
Im about to lose my job as a midwife so i have some serious life decisions to make. Taking my salary out of an already tight budget fills me with fear. My artwork is the only option i have...which im glad of....but isnt a quick financial fix. If anyone would like their horse, dog or cats painted please let me know! Hubby is supportive tho its taken a while ...
I have also discovered my 16yo is 'sub optimally hypothyroid' by GP, with a TSH of 6.8 and FT4 of 16....i lost the plot to be fair...but was reassured by my doc that he would help to sort things out. I wonder when he will regret the day he said i could email him any time with issues etc lol.
I have been thinking about you all recently especially those ive had online natters with...i hope you are all improving? To be fair Im broken but i guess i have to continue the good fight
Sending virtual hugs K xxxxx