I was diagnosed with Graves' disease in august 2014 . I was initially put on 10mcg of carbimazole by the gp and was referred to a consultant at St George's, I was to have my first appointment with him in November but managed to get it earlier so saw him early October. My bloods showed I had deteriorated and he increased to 30mcg.i returned one month later. And he said My t3 has come down but tsh is still very low. He said I should remain on 25mcg and he is referring me back to gp.i was a little horrified and argued with him as I thought that my t3 came down very quickly on 30mcg in one month so if I am on 25mcg surly it will render me hypo!! He said ok we can compromise at 20mcg...I felt a lot of hand pain and foot pain and was thinking am I developing carpal tunnel syndrome and adked him am I going into hypo but he dismissed it that the pain was due to my body trying to get back to normal????..He never said anything about replacing with t4.so I have been on 20mcg since November and feel awful ...so cold ..heart rate being 50-60...so I stopped my carbimazole for a few days until I felt a bit better!! Then would take carbimazole whenever u felt I should!!!
Nobody ,not consultant, nor gp has told me to return for blood tests or to be on t4 !!! I've been so emotional,crying for no reason ,freezing cold,low pulse of 54. I went to gp to say I don't feel well and I'm very cold and pulse of 54.. He said it's cold outside and 54 can be normal pulse as I am slim!! Wtf????
I said I must be hypo!!! And if I'm hypo then what do? He said we can give you some t4??? I demanded blood tests and didnot want to talk to him anymore!!
Why have I not been on it from the start and is it normal practise to be on it when I start carbimazole???
Can anyone advise? Would really appreciate any advice .thanks