Saw endo a few months ago, am hyperthyroid caused by Graves’ disease or thyroiditis (difference of opinion with consultants!) He took blood and said he would ring me that day with results and to possibly reduce my medication from 10mgs daily to 5 mgs daily. .
He didn’t! I rang secretary, explained - still no call! I took it upon myself to reduce to 5mgs daily.
He also told me at that consultation to have my bloods done again after 6-8 weeks. Again he said, let me know the results and again said he would ring me to perhaps further reduce my carbimazole to maybe 5mgs every other day. I’ve had the blood tests
Tsh 1.56 ( within range)
T3 5.9 (within range although on the lower side)
T4 11.0 ( within range but right on the lower side) range starts at 11.
I have felt terrible for the past month. Feeling really tired again all the time. Feeling very down, loose stools, I’ve gained 1.5 stones in the past 5-6 months. Been on carbimazole since April last year. Started on 20mgs.
I have emailed the results to the secretary who responded with “I’ve passed the email on to the consultant”. Nothing. No reply. No response. No advice about meds. I’m fed up of having to interpret my own blood tests. My GP marked them normal. I’m my opinion, I think I’m about to go ‘secondary hypothyrodism’. I have now reduced to 5mgs every other day but I think I should just stop all together.