Feel stupid: After reading your posts I never ask... - Thyroid UK

Thyroid UK

140,927 members166,050 posts

Feel stupid

Samsam03 profile image
4 Replies

After reading your posts I never ask my doctor what my t3 or t4 levels are I go in there really upset as I feel so poorly I was overactivethyroid for three years in May last year I was diagnose with breast cancer had chemo for 6 months found thyroid had corrected itself came back in January with vengeance in May this year had iodine my god thought chemo was bad piece of cake compared to iodine it's know November and thyroid still no better I am under active know never felt so poorly feel let down by my encologist and dr as when I go to see them feel like hypocondriac all they say is it's your thyroid feel as though it has taken over my life I am constipated look like 10 months pregnant breathless can't even walk up the stairs without having rest half way up throats on fire bloated top it all dr says it's graves diesese hang on there what's that ? Please help need advice like what should my levels be? What questions should I ask dr?

Written by
Samsam03 profile image
Samsam03
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Spareribs profile image
Spareribs

Hello Sam - no need to feel stupid at all... that's just doc talk....

You've been through the mill - and docs should be explaining things to you - sadly they don't bother... they tend to talk over us mere mortals!

I can't say I know anything about hyper (yet had hyper symptoms before my dodgy nodule was discovered) & half was taken out so now I'm just hypo and pretty harmless really....

You could ask Doc for associated vitamin/mineral testing - these tend to be depleted after all this hassle...

iron ferritin folate & B12 and my fav Vit D (more than a vit) just for starters - take no prisoners! or no for an answer, please read up & start taking control of YOUR health.... J :D xx

Samsam03 profile image
Samsam03 in reply toSpareribs

Thank you for replying I had blood test three weeks ago it showed my bit c and vit d were very low they have started me on colecalciferol tablet I am on 100 mcg thyroxine a day also 20 mg of tomoxifen I read on here to take thyroxine first thing in am then 2 hours later take vit d why do I need to leave gap ?

Clutter profile image
Clutter in reply toSamsam03

SamSam, food/drink, supplements and other medication can bind with Levothyroxine and stop it being absorbed properly. Take your Levothyroxine with a full glass of water on an empty stomach one hour before or two hours after food and drink, two hours away from other medication and supplements and four hours away from vitamin D3, calcium, iron and oestrogen.

You can take Levothyroxine any time of day/bedtime if it makes it easier to fit around other medication.

You don't need to feel stupid about not having your results. Most of us believe our doctors when they tell us results are 'normal' and it's only when investigating why we still feel lousy that we find out there is a world of difference between normal and optimal.

Ask your GP receptionist or practice manager for a printout of your recent thyroid results with the lab ref ranges (the figures in brackets after your results) and post them in a new question if you want members to advise whether you are optimally medicated.

Spareribs profile image
Spareribs in reply toSamsam03

Good that you've been told anyway- many aren't. Thyroxine needs to be taken with water only - as taking it with breakfast inc milk or other medication can stop it working - it binds to transport proteins in the blood... so won't get where it's needed!

I've not seen a Vit C test - I thought everyone drank orange juice now... it helps absorb iron.

Yet Vit D IS important (sunshine) - if you've aches & pains you will see a difference - may take 3 months or so - but tablets didn't work for me - drops did - now I have a spray (even quicker!) J :D

Not what you're looking for?

You may also like...

Could a lack of iodine lower the TSH level?

I ask because I have been re-reading Dr Toftd's little book on the thyroid for the BMA - 1995...

Iodine Blood Test Result

Hey - I was planning to stop my thyroid medication I never stopped it before and I don't have...
guavas profile image

iodine(urine test)

hi guys/girls, i just received my iodine test back from genova, but cant make out what it means, it...
dannycash profile image

I feel stupid

After having my thyroid removed 12 years ago and believing every word my doctors said I am only now...
patmayhew profile image

What Thyroid Tests?:Please Help

If my thyroid testing shows up normal,but I have every hypothyroidism symptom,then shouldn't I ask...
Temptation profile image

Moderation team

See all
helvella profile image
helvellaAdministrator
Jaydee1507 profile image
Jaydee1507Administrator
PurpleNails profile image
PurpleNailsAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.