I joined TUK 18 months ago. Diagnosed hypo nearly 8 years ago,( Strong family history also of Crohn's) and things not too bad until 2.5 years ago when the TEVA Levo seems to have seriously upset my system (incorrect dosages) Since then I have been very up and down and a year ago asked for TPO test which came back as very raised. After a lot of reading and taking note of advice to others on here, I went GF which did help and then also went lactofree. I have now had a battery of tests both private and NHS:
I have good levels of Vit D=80, B12=1489(191-663), Folate=17(4.6-18.7) as a result of supplementing. Ferritin=154.7(13-150), Magnesium=36.3(29-42), Zinc=5.9(4-7.6), all no supplements and Selenium=136
(76-140) had a few brazil nuts each day.
TPO in 2007 was 15(0-60), last Dec was 101(0-60) in March after 1 month on GF TPO=75 (0-60) and in April after a further month GF was 9.6 (0-34) this was a BH test.
In August after GF and lacto free no TPO detected, however TgA was 52.9 (0-115).(first time tested)
TSH has been very up and down: Oct 2013=0.09(.2-4), Dec 2013 =2.94, April2014 =.34, August =.37 (all same ranges) I was on 100mcg levo last Oct, then told to alternate 75/100 but since Dec reading have been on 100mcg. I am feeling quite good but can be up and down.
Free T4 Oct 2013 =14.9(10-20), April 2014 =16.3 and August 15.02 (same ranges)
Free T3 May 2013 =3.5 (3.1-6.8) April 2014 =4 and August = 4 (same ranges)
I am aware that antibodies can cause fluctuations and my symptoms do seem to vary between hypo and hyper: too hot, too cold, no energy, enough energy to walk 5 miles in a day! Down in the dumps and non communicative to being hyper!
Am I correct in thinking that T4 and T3 need to be higher, that I might not be absorbing the levo and not converting it efficiently. I thought that having optimum Vit and mineral levels would help this!
I also had a urine Iodine test this summer 20 (150-199) so that is not looking good and after reading about Iodine I do have concerns about how the very low level is affecting such things as breast health, where I have had problems before with cysts. (Will try Lugol's iodine next, now TPO antibodies are gone)
Sorry for the long post but I would very much welcome feedback/suggestions from you knowledgeable folks out there.
PS a private scan showed my thyroid was severely atrophied and I am considering having the D102 gene test. I have also thought about low dose naltrexone. I know some on here have tried it with some success where antibodies are concerned.
Thanks for your help