Loooooooooooooong back story. Into my eleventh year now of trying to get a diagnosis, but have now been on levo since June 2013 and am much improved.
I actually went to the doctor’s about episodes of chest pain not related to exercise. I’ve had a chest x-ray and an ECG, both of which were ‘normal’ and some fairly random blood tests, because she picked up that my TSH was ‘rather low’ last time it was tested.
I thought I had an agreement with the path lab, but they have let me down and only did TSH and FT4:
FT4 19.3 (9-26)
In April 2014, on the same dose of levo, my TSH was suppressed, my FT4 was 24.8 and my FT3 was 5.9 (2.8-7)
As far as the chest pains go, the GP has no idea what is causing them and cannot advise me what I should do when I get another episode. I appear to have all the symptoms of unstable angina, and that in itself is concerning, but that's another story.
On the thyroid front she put me in a position where I had to explain to her that I am taking 125mcg of levo, taking 100 on prescription and buying the rest myself from Germany. She was insistent that I was over-replaced and, when I pointed out that the FT4 is well within range, actually said they don’t look at that! She wanted me to reduce to 75mcg, which I already know from experience is not enough. She checked me for symptoms of over-replacement (I have none) and we ended up at stalemate.
She wanted me to reduce because my TSH is too low. I pointed out that it is always suppressed (even on 75mcg). I wanted her to give me the 125 on prescription, preferably with enough 25s that I could try 150mcg again (that was too much last time) as I have some return of symptoms.
Interestingly, as my FT4 has come down, so my cholesterol has gone up, from 5,2 to 6.2 in six months.
I’m tempted just to get some more levo and put my dose up and see what happens – or is it time to try NDT?